Wednesday, May 13, 2009
What a day.
This was a day of appointments, tough discussions, and frustrations.
Our orthopedic appointment was at 8:30. We got called in to our room at 10:00. They sent us for hip xrays. The attending came in at 10:30 (not our regular doctor, the one we were scheduled to see). She said that she reviewed the xrays with the ortho and Peanut now has mild hip dysplasia. She showed me the xrays, and compared them to ones we did two years ago. There's definately a difference. Since it's mild, the ortho says we can wait a year and then redo xrays, and discuss surgery. If she starts having pain or dislocations from it, we will go back sooner. This is major surgery. Breaking the thigh bone or something and reshaping it? I don't know, it blew me away and I lost what she said. Anyway, we were done at 11:00. So 3.5 hours later, and five minutes of talking to the attending doctor, amnd we were done.
Then we drove to the urology clinic. Unloaded the wheelchair again, all her supplies, and headed to the elevator. Which had an Out Of Order sign on it. :( Went back to the car, put her in the car seat while I reloaded her wheelchair. Lugged her and all our supplies up two flights of stairs. And yes, I have bulging discs in my spine and arthritis in my hip. LOL
The urologist agrees that cath'ing isn't working for us. It is impossible to do it by myself, she is SO strong and opposed to it. I showed him how I try to do it solo, and he agreed it's impossible. He tried, he couldn't do it alone. If we need to catheterize every 4-6 hours, we need surgical intervention. He explained that a vesicostomy is best if you have high bladder pressure, which my Peanut doesn't have. Or didn't, at her last VCUG. He thinks we will be best served by a Mitrofanoff, through her belly button. (Click here for info on Mitrofanoff)
He is ordering a VCUG to check the bladder and it's pressures. I am to log post-void residuals for a while. This should be fun. When my husband is home to help me, I am to check her diaper every 10 minutes. As soon as it's wet, we have to catheterize her and see how much we get out. This would be her post-void residual, or the amount left in her bladder after she pees. He wants us to record 10 of these to get a good average.
The VCUG and post-void residual levels will tell us what to do. Also he says that when we do this surgery, he will be rebuilding her urethra. It does not point in the normal direction, and is situated kind of oddly. So this will be fixed at the same time.
He says this should happen within the next month or two. Wow. Well, at least now we can schedule her teeth to be cleaned, since she'll be sedated. ;)
at 6:01 PM