Tuesday, September 30, 2008
Tuesday, September 23, 2008
Thursday, September 18, 2008
We need to have our annual IEP for Peanut soon. Before we do, I told the teacher that I wanted to meet with her and discuss my goals/hopes/etc. for this year. I don't want to go into another IEP and get blindsided by what they think her goals should be. For some reason they are insistant on trying to get her to eat orally. We are not that concerned about it! We are on a break from feeding therapy, as all it was accomplishing was frustration. So for the school to have an oral eating goal is silly.
Tomorrow I meet with her teacher for an hour. She is new this year and seems very open to discussion. She is helping me get Peanut mainstreamed, which seemed impossible last year. I hope that she'll listen to me about my hopes for Peanut. I want her to be shown more switches and picture boards (PECS) and such. They seem to fight me on things that might actually cost them a dollar or two.
It is so frustrating to be the only person seemingly fighting for what my child deserves! She is such an amazing and incredible being, and she deserves the world.
Saturday, September 13, 2008
Editted to add: I ended up taking her to the Urgent Care. Her ear was hugely swollen, and there was a red streak heading from it down her neck. The dr diagnosed cellulitis, and started her on Keflex. I am to take her to our regular pediatrician on Tuesday, and to the ER if I notice it looking worse before then. Poor peanut! All this, from a mosquito bite!
Then we spent the day cuddling on the couch. Of course, that means Mommy is now sick too! There's no rest for a tired mommy. :(
This morning I decided to give her all her meds first, and then wait 30 minutes before giving her morning pedialyte. She immediately spit up the meds. I re-dosed her cold medicine, hoping to knock off the phlem at least. She has managed to keep that down, so I am going to attempt pedialyte.
As a Mom, I don't think I ever realized how many things I would do that are SO gross, yet have become second nature. Peanut is a big time retcher. She always retches and gags, and sounds like she's going to puke. I know the sound of stuff actually coming up, verses just sad retching. This morning I didn't have a towel nearby so while yelling for Monkey to bring me one, I cupped my hands and caught it all. ICKY!!!
It's going to be a long sick weekend. I need to run to WalMart and stock up on cold meds, and then do the regular diaper/soap/etc shopping. What I really WANT to do is take a long nap!!
Please keep Peanut in your thoughts. If she continues to spit up her pedialyte today, we'll end up back at the ER. :(
Wednesday, September 10, 2008
It SUCKS. Peanut has been in school for one week exactly, and she came home snotty today. I hate that parents send in sick kids! I can understand a slight cold, but the other day one girl in her class was green snotted and icky. Keep the poor thing home, and hopefully everyone else won't get sick too!
I foresee even less sleep than normal tonite. I am tired already, I'm sure tomorrow will be loooooong. Good thing it's almost the weekend! If I have to clean up any more spit up, I might just lose my mind.
Wednesday, September 3, 2008
Peanut is in the same classroom she's been in for two years, since she turned 3. The class she's in goes from age 3 through the end of 8th grade. It's the only severely handicapped class in the district that goes through junior high. There are about 8 kids, and 6 adults (Teacher and aides). I wasn't happy about her going back to this classroom, as prior to now it wasn't kid friendly. Peanut is the highest functioning kid in her class. Most of the other kids are not able to crawl or play with toys or interact in any way. The classroom was dedicated to that type of child, and Peanut had outgrown it. I wanted her transferred to the same school Monkey goes to, and put in a regular special ed class. I also wanted her mainstreamed for a portion of the day.
Turns out that they have a new teacher in her class this year. She's incredible! The classroom is TOTALLY kid friendly, desks at wheelchair height, etc. Centers are set up, it just looks great. I know the teacher from the past, and I am thrilled with her being the teacher. So for now we are going to stay there. Also, I talked to the Director of Special Ed, and Peanut will be mainstreamed for half of the day every day, starting in October!!!
I am so relieved that everything fell into place. I was really geared up for a big fight against the school district, and have even already contacted an advocate! Now I won't need all that, thank goodness.
Monday, September 1, 2008
Peanut and Monkey go back to school on Wednesday. It has been a fun summer, but I am glad to get back into our normal routine. I think Peanut has grown bored of me anyway, as she is getting fussier earlier in the day now than normal.
Peanut is going to be a KINDERGARTNER!! Can you believe it? She is going to the same Severely Handicapped class she's been in since she turned 3. I am working on having her transferred though, and the school district is really fighting me. I want her in a regular Special Ed. class, where she's not the highest functioning kid. Right now she's just about the only kid in her class aware of her surroundings, much less interactive. I want her around other active, functioning kids! I also want her integrated for a bit (maybe an hour a day?) in a general ed kindergarten class. The school district is pitching a fit. I know that she is not going to learn her ABC's or how to write her name, at least not now. But she IS capable of socializing and sitting with other kids her age. I think she needs that. I think she DESERVES that! So, the school district battle is waging.
I am still trying to figure out how to get my blog all set up how I want it. I will try and post pictures later today if I get a chance.
Thanks for checking in with us, I know our blog is new and kind of dull still. :)