Feeding update

It's been over a month since we've tried easing Peanut's GI problems by changing around her formula mixture. Because of her metabolic disorder, she has to be on a low-fat, high-protein diet. It's hard to make when she doesn't take anything by mouth, everything through the tube has to be measured exactly right.

We stopped her BeneProtein, and her Polycose, leaving her on just Neocate Infant. She was better GI-wise than she had been in ages! She started sleeping so much better through the night, and although she was still retching and gagging, she wasn't actually vomitting. The dietician had me slowly add the Polycose back in, because she needs those calories. She did fine for two weeks, still no vomitting and still sleeping better.

Then the dietician asked me to add back in the Beneprotein, so we could be SURE it was that. It is a whey protein, which is a dairy product. We added it for two nights to her mixture, and we had two hellish nights. She was up screaming and writhing around in her crib. She was retching and gagging and ... throwing up. So I stopped the Beneprotein last night.

At least we KNOW what the problem causer is now! The dietician is now trying to find a protein supplement that is dairy free.

I had this thought this weekend, that perhaps I should research blended diets. Wouldn't it make more sense to get a recipe that would include all the calories, fats, proteins, vitamins, etc .. .that Peanut needs? Then I could blend it up real good and put it through her feeding pump that way.

I am a bit scared to ask the dietician about it, afraid to sound like a wackjob. LOL I think I will ask her when she calls me back. The worst she could say is "No, I don't recommend it".

Do any of you use a blended diet for your tube-fed kids, instead of formula??