My girl has never had a seizure before, but her EEG's showed spikes indicating the potential for seizures. I've been told she will have seizures at some point, and we've been lucky so far.
Not anymore. She had a 45 minute on and off episode and then was unconcious. Neuro said to call 911. We did blood and urine work, and for some reason chest xrays?
The ambulance brought us to the closest ER, so now that's awake and back to baseline we are waiting to be transported to children's hospital. They're going to do an mri or ct as soon as we get there.
Please pray for my Peanut. I am so scared about seizures!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
3 comments:
Oh my gosh, I'm so sorry. Seizures are so horrible. Hopefully its not something new on an MRI and a med will keep her seizure free. We know all too well seizures, they suck.
I am sorry the seizure-free streak has ended, I can only imagine how scary that is for you and Peanut. I am praying for your sweet girl.
Update when you can.
We'll keep you in our prayers.
So much for a "boring" update.
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