Still waiting ...

I can't believe we are STILL waiting for the results of the Ethylmalonic Encephalopathty test. I has been over a month and I am going crazy. They told the metabolic geneticist that it should be in by mid-September. Here we are, it's mid-September! Ugh ... I wish the wait was over.

Emily had a rough morning, with a lot of small seizures. I told her (okay, so I was telling my husband more than I was really telling her) that she had another 2 minutes to knock it off. That if she continue to cluster, I was going to administer Diastat and call 911. Fortunately that did the trick. She had one more after my warning and that was it. I sent her to school with a warning note, and haven't heard from them. She must be okay, they call me every time she seizes.

My hubby started a new job, but the hours aren't fabulous. He is working most weekends and until late evening. So much for ever having family time! But ... it's a job, so I can't complain too much. Please pray/hope/cross your fingers that it works out and he starts bringing home some real income!

Hopefully my next post will include the lab results. And even more hopefully they will be negative/normal.