Thursday, September 16, 2010

Still waiting ...

I can't believe we are STILL waiting for the results of the Ethylmalonic Encephalopathty test. I has been over a month and I am going crazy. They told the metabolic geneticist that it should be in by mid-September. Here we are, it's mid-September! Ugh ... I wish the wait was over.

Emily had a rough morning, with a lot of small seizures. I told her (okay, so I was telling my husband more than I was really telling her) that she had another 2 minutes to knock it off. That if she continue to cluster, I was going to administer Diastat and call 911. Fortunately that did the trick. She had one more after my warning and that was it. I sent her to school with a warning note, and haven't heard from them. She must be okay, they call me every time she seizes.

My hubby started a new job, but the hours aren't fabulous. He is working most weekends and until late evening. So much for ever having family time! But ... it's a job, so I can't complain too much. Please pray/hope/cross your fingers that it works out and he starts bringing home some real income!

Hopefully my next post will include the lab results. And even more hopefully they will be negative/normal.

8 comments:

The VW's said...

You MUST be going crazy! Waiting on results can be so emotionally draining! Hope you hear soon....and I pray they are good results!

LOVE the pic of Emily at school yesterday! What a cute and happy girl! That is awesome that her teacher sends you pictures so often! Hugs!!!

Kristi said...

I just posted on fb about the results... so ignore me. I'm so sorry you are still waiting. UGH.
Glad to hear hubby got a new job... bummer about the hours. I feel your pain on the weekend thing... mine works every Fri-Sun and every other Thursday, too.
But, as you said, it's a job - - can't complain!

Big hugs to you as you wait for the results and hoping Emily had a seizure-free remainder of her day.

Debbie said...

the waiting game sucks big time...

it is easier knowing, whether good or bad, than waiting.

I really hope results come in soon and you get good news!

Becky said...

NOthing worse than waiting. Don't these people know how agonizing it is for families? If they did, they just might get it out a tad faster. Hang in there.

SECRET PEPPER PERSON: said...

I hate waiting. Praying while i wait with you!

Sarah said...

I hate waiting on results! And, i hate seizures! especially when they come in clusters! Hoping that your hubby does well at his job and likes it. :)

Colleen said...

Uggh, I can't believe you are still waiting for the results. Please let us know as soon as you find out.

Zoey's mom said...

Peace while you wait and hoping Emily continues to heed your warning and knocks it off.Praying for that.