Monday will mark FOUR WEEKS since we did the blood test for Ethylmalonic Encephalopathy.
They told me it would take 3-4 weeks to get the results. I will be calling first thing Tuesday morning to see if they've heard anything. Please cross your fingers, pray, whatever it is you do ... this diagnosis would be devastating. I would MUCH prefer her to have Cornelia de Lange Syndrome!
The kids start school on Wednesday. As PTO President I have already gone back a few days over the last two weeks, to get things ready to start. We have had a relaxing summer, I wish it wasn't over!
Tomorrow we are taking Jake to Walking With the Dinosaurs, while Emily stays home with her nurse. Jake is SO excited! :)
12 comments:
Waiting does stink!! I hope you get results this week and I hope it is not the Ethylmalonic Encephalopathy. Prayers for you and your family while you are waiting.
Always on a holiday weekend too isn't it. That extra day is a crazy maker.
I hope you get the results soon - and that it isn't EE.
I hope the kids have a great first week back at school.
Thinking of you.
Waiting is the worst.. Hope the wait isnt too much longer and that the results are not EE. Thinking of you
Waiting does stink. I am glad you are calling Tuesday... and that you get an answer and that it isn't EE.
Have SO MUCH fun at the show! Can't wait to hear about it!
Waiting can sometimes be harder than the answer. Hoping, hoping, hoping with you.....Much love friend
Praying you get the results soon and its not EE!
He is coming down this next weekend. His testing is the 11th. They told him to plan for a week because if he passes the first test than that Monday he will do an interview! I'll ask him, he's been looking at hotels, but I don't want to pay for a bunch of nights in a hotel when I'm trying to fly to Ukraine in a couple of weeks!
I hope you will find peace and that you get the results ASAP! Hang in there!
I hope you get some results soon! It is tough waiting!
Fingers and toes crossed!! xo
I'm really hoping you get an answer today and that it is the one you want!
Keeping everything crossed!!!
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