We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
Friday, September 17, 2010
Make a Wish
I just got a card and letter in the mail today, Emily is being granted a Wish! :) I am so excited, although I will be honest and say that it made me cry at first. Make-a-Wish is something you hear about and think "dying kids". Sorry, I know that's not PC but it's true. So then I read more and I know they talked to our pediatrician and Emily's intractable epilepsy is considered life threatening. But still ... to know that this incredible organization is gifting MY child, means MY child is that fragile. It stings, I'll admit.
But it's awesome! I cannot wait to meet with her Wish Team. We have some ideas in mind already. :)
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11 comments:
That is awesome - enjoy your wish. As Ashlea needs a kidney transplant, she will be eligible for a wish in the future too.
Can't wait to hear what you come up with!
Very exciting! I completely understand your feelings.....I felt the same way when Gavin was nominated. Hugs!!!
AH, I'm so excited for you guys. It's kind of a weird position to be in huh? But, nonetheless, it's pretty exciting that little Emily will get a wish granted. I can't wait to hear more!
Thomas got his wish a few years ago. We went to Give Kids The World in Orlando. It's a village for wish kids and it was fantastic. We got tickets to every park but you don't even have to go anywhere the Village is so much fun. They have an ice cram shop that opens at 9Am and closes at 9 pm and of course it's free....i gained 9 lbs eating about 3 banana splits a day and no I'm not tired of them and never will be :), Here's the link:http://www.gktw.org/
Yay for Emily!
I know what you mean, Sara... about it stinging.
It was mentioned to us when Gracie was younger and I couldn't even absorb the thought. It was mentioned again this summer and after the harrowing ordeal and some info since, I've digested it a bit.
Did you apply or did someone nominate Emily? Just curious...
So excited for her and you... and what you decide to do! :-)
congrats, so exciting that Emily gets a wish.
I had those same feelings initially when Junior was getting a wish. His seizures and lung disease qualified him.
Very exciting - I think Cici will get a wish too, so at least there's something exciting about all of us!
My Little man was granted a wish by a lovely organisation earlier this summer and it was an amazingly superb day for us all.
But it was bitter sweet as like you said, it was so sad to think that our little man was in the category to be entitled to such wishes, but regaurdless of this we are so pleased we did it for him and it provided him with a day he (nor us) will ever forget, the happy memory's make up for all the heartbreak involved with his conditions.
I am so happy Emily was chosen! I can understand the biter sweetness of it all though.
I'm really excited to hear about what you all choose!
It's an amazing experience. I'm glad you guys are doing it. Hey...how is sweet Em doing? I saw your post on FB. Worried about her! Update when you can. xo
I'm excited to see what your ideas are. Will need some myself one day... know what you mean about your feelings there. And when to do it??? How do you know when the time is right???
And I can't believe you are still waiting for those results!!! I'm still hoping and praying...
Much love,
Christy
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