Saturday, October 23, 2010
We just had our meeting with Make A Wish!
We decided finally what to wish for, for Emily. We were thinking of a trip, a vacation, a cruise. In the end, we decided that although she would like any of those things, her house and her bedroom are her favorite places of all.
She was denied a Sleep Safe Bed through her insurance, so we are asking for that. They are going to propose that we get a new bed, an EmFit epilepsy monitor for the bed, a mounted TV with DVD player, and all new storage. Her room is so full of medical equipment and supplies that it is a disaster and has rubbermaid containers everywhere. So the plan is for them to completely redo her room.
She will LOVE it. She loves snuggling in her bed and watching DVD's. Without her down time every day she is extremely grumpy.
They are going to see if they can throw in an Ipad as an extra! :)
at 11:29 AM