Saturday, October 23, 2010

We just had our meeting with Make A Wish!




We decided finally what to wish for, for Emily. We were thinking of a trip, a vacation, a cruise. In the end, we decided that although she would like any of those things, her house and her bedroom are her favorite places of all.

She was denied a Sleep Safe Bed through her insurance, so we are asking for that. They are going to propose that we get a new bed, an EmFit epilepsy monitor for the bed, a mounted TV with DVD player, and all new storage. Her room is so full of medical equipment and supplies that it is a disaster and has rubbermaid containers everywhere. So the plan is for them to completely redo her room.

She will LOVE it. She loves snuggling in her bed and watching DVD's. Without her down time every day she is extremely grumpy.

They are going to see if they can throw in an Ipad as an extra! :)

19 comments:

Michelle and Sean said...

Yay!! I'm so excited for her!!

Sarah said...

that is so great and what a PERFECT idea!!! I'm so happy that MAW is there for children like Emily!

I peeked at your last post about her birthday. the pictures are wonderful and everyone looks like they had such a fun time!

Jennie said...

What a great thing for them to do. I can't wait to see all of the pics of the before and after.

Zoey's mom said...

Perfect.All of it.Absolutely perfect.

So excited for you guys.For her.Zoey's Wish Day was all we hoped it would be and be are certain, that Emily's wish will be the same!

Lacey said...

First of all, you were denied a sleep safe? What the h#@l!
That will be a fantastic wish! I bet it will make her room much more accessible. I was just thinking that we will never have room for a sleep safe in Jax room. Way too much rubbermaid and equipment too!

ChaneyM said...

PERFECT!!!!!!!!!

Alison said...

Sounds like a fantastic idea!

Jenny said...

How perfect! What a great idea! I'm excited for you guys!

Cathy said...

I am so glad that you are getting your wish. I love her sleep safe bed. It saves my back as far as bending over. Also we can tilt the head up and the knee up so she cacoons right in the lil valley. I have been thinking of a handicap accessible bathroom and also an aquarium. Her fav thing at the hospital is to llook at the fish. They are big enough for her to see and move just at the right slow pace for her to follow. Please take pictures when it gets done. Thank you for updating us.

The Fluck Family said...

that sounds like such a great idea...can't wait to see it all done up!

Rebecca Jackson said...

What a perfect wish!!! Can't wait to see the "after" pictures!

Becky said...

YAY! It's about time. :) I'm so glad that she's finally getting her wish. And what a HUGE help that will be.

SECRET PEPPER PERSON: said...

I think that is the BEST idea! And unlike a trip it will last for ever!
Can't wait for the photos!

Lovin Lane said...

Oh I cant wait to see her wish completed....

Elizabeth said...

Wow. This all sounds so wonderful. I can't imagine a more deserving girl for all those things. I'm interested in hearing about the EmFit monitor. We have been sleeping with Sophie for YEARS --

The VW's said...

WOW! Sounds great! I bet you guys can't wait! Sounds like you made a wise choice! Hugs!

Colleen said...

Just catching up! That's pretty awesome that she's getting a room makeover and a new bed!

Andy and Jenni said...

You seem better at keeping up than I am... sorry to be late to respond, but this bedroom makeover sounds FABulous! I'll look forward to photos of the finished project!
Happy Halloween...

ferfischer said...

I've heard those beds are SO great! This sounds like a great wish, actually!