We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
Thursday, October 7, 2010
Heading to UCLA
Today's the day! Finally ... we have been waiting anxiously for our UCLA Epilepsy Center appointment since July. Since then her seizures have done nothing but get WORSE over time. With the new med she's on (since her last hospital stay two weeks ago) she isn't having tonic/clonic seizures, and she isn't clustering. But she is still having constant seizures, every day. It's getting to the point that I just want to cry when we sit and play. :(
Hopefully UCLA will have some insight into how to help my beautiful girl. I hate feeling helpless!
Please help us raise money for our Children's Hospital! Donate to Princess Emily's team for the CHOC Walk! click here
Any amount helps, even a few dollars. :) Thank you!
Subscribe to:
Post Comments (Atom)
4 comments:
praying that they can help her!! I love that picture of her smiling. she is just too cute!!
She will be in my thoughts and prayers. I hope you will finally get some much needed answers!
Sending prayers that UCLA will come through for you, and most especially sweet Emily.
Sending prayers!
Post a Comment