October!

October already? It seems impossible. Emily will be SEVEN on the 16th. That is incredible! How many times have we been told she wouldn't be with us long. Here she is, and THRIVING! :)

Her seizures have been a ton better this week. She's had quite a few drop seizures when she's sitting on the floor. She just drops straight over, often times forward onto her face. It happens SO fast, in a split second! We have seen a bit of absence seizures and lots of small myoclonics, but that's about it. No tonic clonics at all! We go to UCLA Epilepsy Center this Thursday finally! We've been waiting months for this appointment. I am leaving at 6am for a 9am appointment, as it's in the far end of Los Angeles. Traffic from here to there for a 9am appt will SUCK. It's going to be a long drive, it better be worth it! ;)

I got the formal results of the EEG Emily had two weeks ago after her first ambulance ride of the week. It showed constant seizure activity in the left temporal region. She had them when she was awake and they increased in activity when she fell asleep. The office results read "Sleep-activated left hemispheric sharp waves, encompassing the C3 electrode. Profound background slowing. The above findings are consistent with the patient's clinical diagnosis of symptomatic focal epilepsy, and appeard as Lennox-Gaustat Syndrome".

This EEG just proves what I have thought for a long time now. She is seizing during the day a lot, but as soon as she falls asleep it's almost non-stop! I hope that UCLA takes this seriously. We are getting beyond exhausted in this house.

Emily's IEP is this Tuesday also, so this will be a busy week. I hope YOU are all doing well!