I have come to think that they really get enjoyment out of screwing up orders!
We haven't received our diapers or chux in almost two months. According to our DME company (coughA-MEDcough) they haven't gotten a new prescription from our urologist. They gave me three dates that they "faxed" a request to the urologist's office. When I call the uro office, they tell me that they received ONE request, by MAIL. Not by fax, and not three. Yet when I ask the DME company what uro fax number they are using, it's correct. The urology office then takes a full week to write the prescription, and tells me that it's sent to the DME company. The DME company a week after THAT still says they don't have it. So who's lying?!?! I friggin want to strangle people.
Okay, but I can buy diapers at the store, so we are not in trouble here really.
Oh wait, what I can't buy at the store is her Neocate Infant formula with NO added dha/ara. You know, the stuff that she's not supposed to consume because of her metabolic disorder. That silly little detail evidently doesn't matter to anyone.
I didn't get any formula delivered this month. I called the DME company and pitched a fit. They told me that (again, does this sound familiar?) the prescription had run out and they needed a new one. They agreed to send me out 2 cans on Saturday to get us through until the GI office sends a new prescription. So I get them Saturday, and they are WITH dha/ara. Which is the opposite of NO dha/ara. Hello? Keep in mind that they told me they were sending this as a "favor" to me, while they waited for the new prescription.
When I called first thing this morning, the story is different. They now say that they got a new prescription from the GI on 4/29. So, over 2 weeks ago .... not today. So they had it Friday, when they said they didn't. BUT - it was written for Neocate Infant WITH dha/ara. Ugh .... yeah, the one she CAN'T have. And they can't switch us back to the old formula, because a new prescription supercedes all previous prescriptions.
So I have a call in to the GI office and the Metabolic Dietician. All I want is some damn formula that won't make my kid sick. I didn't realize I was asking for the world.
Oh, and some friggin diapers would be nice too!!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
8 comments:
omg. that totally sucks. i don't know if you can shop around dmes, but we use two currently. one gives us diapers and the other gives us everything else. when one pisses me off, i plan on going to the other one...
Oh what a pain. We have had those kinds of issues as well and I am so glad we were able to switch almost everything to a new company. Interesting how once we changed companies all the issues disappeared.
I totally think that is the only reason DMEs exist, to screw things up royally! I don't believe I have ever gotten one order that was correct. It stinks, because we are not talking about leisure items here. These are things our kids NEED for their health and well being! Sorry you are having such hard times with your company right now.
I'm so sorry, I should be thankful because I rarely have these problems. I am lucky to have a greaat home care company that basically gives me what I need and asks questions later!
Prescriptions, insurance companies, home health companies, doctor's offices, orders, telephone coversations......all so frustruating! Hope this clears up for you soon! Love and Hugs!!!
Ughhh, that's got to be so frustrating. I hope it works out for you soon.
I agree. I've never gotten an order completely correct, either. And my daughter is 3.5 years old, which is a lot of months to try and get an order (that doesn't even change that much) right! It is very frustrating!
Also, I am so glad you got some encouragement from my blog! We have been working on oral acceptance from 4 months old to now and it is so nice to see some progress finally! Often, with our kids, the progress isn't steady. It is a one step forward, two steps back kind of progress. But, I don't think we're very picky. We'll take whatever we can get, right?
Nice to meet you!
Oh, I just saw your post about Peanut's sore on her back. Harlie has kyphosis, too, and it is constantly getting beat up and bruised. This is going to sound silly, but maybe you could put some of those donut patches around it to keep the pressure off the sore. But, now that I'm thinking about it, that was probably a long time ago and it's all better now. I hope that's the case, anyway.
Post a Comment