Saturday, December 12, 2009
Obviously not everyone who reads my blog has a disabled child, so I thought I would share something with you all. :) I had to change Peanut's g-tube today. It has a little valve on the inside called an anti-reflux valve. It is supposed to prevent anything from coming out of the tube when you unhook it from the feeding extension. It doesn't last very long, and pretty soon the g-tube leaks every time you open it. My understanding is that Peanut's lasts even less long than normal due to the amount of retching she does. I don't know if that's true or not, but we never make it even 3 months before it's leaking like crazy.
Here's the new button. I fill it with water before inserting it to make sure it doesn't have a leak. Then I take the water out, put it in her stomach, and refill the water balloon.
Here's her stoma after I took out the old g-tube. It doesn't look bad! Some kids have horrible granulation issues around it, but Peanut's has always looked great. KNOCK ON WOOD! :) In the photos there is a darkish ring around the stoma (hole), which I don't see when I look at her in person. I guess it's just toughed skin a bit from having the g-tube twirling on it all the time.
Here's a side-by-side of her new and old g-tube. Ick, huh! The old one looks so nasty when it is taken out. Peanut's looks worse than some kids, because she gets a blenderized diet. She gets a lot of orange and green veggies, so they tend to discolor it more quickly than normal.
The first time I ever changed a g-tube at home on my own, my husband passed out. Needless to say, he doesn't do "ick" well. :) Now we are pros! No fainting, no icked outness, just pull it out and pop a new one in. This little piece of rubber is the only way my Peanut gets nourishment. Isn't it amazing!
at 7:40 PM