Monday, November 16, 2009

Waiting for the neuro to call me back

I decided this morning that enough was enough, and I officially hate this Clonazepam. My Peanut is gone. She is this crying, sad, whiny, sleeping, vacant, fogged over shell of herself. It sucks.

I emailed the neuro this weekend and he said it definately sounds like the side affects of Clonazepam. I had asked about Phenobarbital and he said that it has the same side affects but "usually much less severe". Well hello then - can we switch? He didn't answer my email again, so I just called and left a message with his receptionist.

This fog my Peanut is in, is crummy. She is so sad all the time, like she's depressed. My girl is ALWAYS smiling and ready to giggle!

Also, she has had some seizures yesterday and today. Last night when she was asleep she started breathing really funky, and then her left arm started twitching. Her eyes fluttered open and shut. It lasted a little over a minute. Today she's had three head drop seizures. Ugh.

Of all the issues we have dealt with, this is the hardest emotionally on me as the mom!

3 comments:

Becky said...

Praying for you! I hope you can get her back to herself soon.

Lacey said...

I so agree, seizures are so emotionally draining. Change that dang med neuro, there are many more to try. Lets get her happy face back.

The VW's said...

I am so sorry that Peanut and you are going through a rough time! Seizures and the meds to control them SUCK!!! I totally agree that dealing with these side affects and seizures are the hardest thing that us moms have to go through with our special children! My heart is hurting for you now, because I can relate!

I pray that they can get her on a different med soon and that your Peanut is her smiling self very soon! Love, Hugs and Prayers!!!