We decided to go out of town last weekend, to visit friends and support them with a fundraiser. They had a second annual bbq fundraiser to raise money for the Foundation for Children with Microcephaly. Emily doesn't like being away from home and was a grump most of the trip, but it was SO nice to get out of town for a few days! We visited the Charles Schulz (Charlie Brown creator) museum, and Jacob had his picture taken picking the nose of every statue we saw. :)
We are home now and settling in. Emily is doing the same, not very well. Her g-tube is draining 24 hours a day, except for right after giving meds. She is still retching and vomiting, and crying. I emailed the GI this morning but haven't heard back from them yet.
Something has to give, this girl needs a break!!!
And for all of you who live local to us, mark your calendars - October 15th is going to be Emily's giant 8th birthday bash! :)
6 comments:
I am so glad you got away but so sad that Emily is still struggling.Praying for your sweet girl.
*I am running in a marathon that weekend :(
I'm glad you got away but so sorry to hear of Emily's pain and discomfort. I think I've mentioned it before, but have you ever tried osteopathy with her? One of greatest, if not THE greatest osteopaths in the world is just down the road from you in San Diego -- Dr. Viola Frymann. She works with brain-injured children and is just amazing. I think it would do Emily and all of you a world of good to take a trip to see her. It would be "out of the box" thinking, and I don't think it would "cure" your little girl, but I feel certain that she'd get some relief --
Love the nose picking. How perfect. Hugs for you and Emily.
Hi friend! You won the special needs bib giveaway on my blog! Contact me by email at colofisch at yahoo dot com so I can get you in touch with the woman who will make it for you! Congrats!
I am so glad you got to get away beside to the hospital. I am praying that something work soon for Emily. Annabel is starting all the gagging and retching since Sunday. Stresses the heck out of me.corcent
Although not quite yet, I love that I can say I'm "local" and of course will be attending that birthday bash!
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