The rash was worse than ever late this morning, and her face started swelling. We took a trip to the ER. Peanut ended up getting a massive dose of steroids, and orders to continue with Benadryl around the clock. We have to call the neurologist in the morning and get an appointment for tomorrow. We need to find a new seizure med to start her, he says probably Keppra.
And she has a renal ultrasound in the morning. The ER doctor said to still take her, and show them the discharge papers that show that it's just an allergic reaction and not something contagious.
We went by my parent's house for dinner. Yum!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
4 comments:
oh poor Peanut, sure hope she is starting to feel better.
WOW! She really has reacted to the medication. SORRY! Kepra is what Ben is on...we've been happy with it so far. I hope she feels better soon.
I'm glad you got some answers to reassure you. Jax is on keppra too, its one of his cocktail of seizure meds.
Oh poor little girl. I'm so sorry!! We are praying for you guys!!
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