(I need to state first for the record, that the picture above is a bit deceiving. Emily looks like she has a little paunch belly, doesn't she! She is really skin and bones, this was bloating. I wish her tummy was round like that!)
Emily had her VNS surgery on Wednesday, everything went great with that! She was in recovery for about an hour and a half, and we were discharged. Then Thursday morning she woke up retching and gagging. Her home nurse gave zofran through the g-tube, she retched it up immediately. She redosed it, and it managed to stay down. So 20 minutes later her nurse gave all her morning meds, and she retched them up. In between all this she had three explosive diapers, so things weren't good. We immediately packed up and headed to the ER. Good thing I had her nurse with me to sit in the row with Emily, so she could suction her as needed while I drove.
We are back in the hospital, still with her gut shutdown completely, still with no answers. We did xrays, ultrasounds, more xrays, and more ultrasounds. They found a lesion/cyst/something on her gallbladder. We are waiting until tomorrow (Monday) and then going to do an MRI. The doctors have to contact her neurosurgeon first to get the proper information on how to do the MRI now that she has a VNS implanted. Once we get the MRI results we'll know more. They warn me that this may have nothing to do with what is going on .. that she could have a congenital cyst that's been there forever ... or it could be "the answer". Who knows. Depending on what it shows and how she does, the GI might redo the Upper GI, this time doing a small bowel follow-through as well.
I am exhausted. We have been in and out and in and out of hospitals non-stop lately. I am so sick, bad head cold with sinus headaches. The stress, poor eating, and bad sleep aren't helping the situation.
Please pray that they get to the bottom of these problems soon. My little girl is being SO good in the hospital, but how much can we all take? When she's not nauseas or in pain, she is her normal smiling self. She has all the nurses wrapped around her little finger. They literally argue over who gets her case each day. I am so glad that people love my girl!!! I just hope we are done with this soon.
