Peanut had two episodes of head drop seizures at school this morning, so I went and picked her up and brought her home. The neurologist said they are most likely not infantile spasms, because she's 6. They start in much younger children he said.
We go in tonite, for an MRI at 8am tomorrow. She can't be NPO (without food) for 8 hours before anesthesia due to her metabolic disorder and hypoglycemia. So we get to go in today and hook up to IV's until the morning.
The neurologist is concerned as to the reason for the seizures to have just started now, when she's never had then before. And there are more than one type happening. They are all originating from one specific spot on the brain, so he wants a close look at that spot.
Unless something is glaringly obvious on the MRI tomorrow morning, we will discharged and have a follow-up appointment with the neurologist soon.
I hate sedating my Peanut, she always wakes up screaming and miserable. Never mind the IV start, which is a nightmare every time. Ugh, I wanna throw up.
Please pray the stay goes smoothly with no shocking results!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
6 comments:
You are both in my thoughts and prayers tonight and tomorrow.
(((Hugs)))
Thinking of you guys!
I'm sorry that you both have to go through this! Praying that everything goes well and that you get some answers and solutions soon! HUGS!!!
I'm SO sorry. That is heartbreaking. I pray that there is nothing shocking as well. I hope that things go well and that you can get out of the hospital soon. Keep us updated.
Praying for you, please keep us updated.
Joining the others here in prayer and waiting for an update.
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