We woke up to a pleasant surprise - the rash is a little better! Definately not gone, and definately still insane. But better. :) We went for the renal ultrasound first thing this morning, the lady freaked. I told her it was a medication reaction and showed her the ER discharge papers, and she was okay with it. So hopefully we'll get those results soon, and it will show some improvement in her hydronephrosis!
We have a 10:30 appointment with the neurologist. We are going over the MRI results FINALLY, and talking about the new seizure med.
We are having a (belated) birthday party for Peanut this Saturday, so hopefully the week will calm down!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
1 comment:
so happy to hear the rash is a bit better today.
Regional Center is the program that will pay for the van adaption. Is Peanut involved with them, I am sure she would qualify for their services.
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