I've mentioned before that I'm the PTO President at Monkey's school. And yes, I admit that I am InSaNe! It's not like I didn't have enough on my plate before I took this on ... LOL. Anyway, December means time for our big Winter Festival! We bring in snow for a sled ride hill. I know that sounds silly to lots of you, but it never ever snows here. We can drive a few hours to snow, but a large percentage of our student body has never been to the snow. So we bring the snow to them! We also have carnival games, food vendors, craft boutique, santa pictures, and a raffle.
It's a LOT to plan. Things to schedule - lights, table, booth rentals, games, etc. Arranging that many volunteers is hard. It's over 50 people at the least!
So I have been stressing out a LOT lately. Ugh, I hate stress. Luckily two other board members came and kidnapped me Saturday afternoon and we went out for dinner and beers. The only rule was NO TALK ABOUT SCHOOL. Yay! :)
In Peanut news, not much has changed. She has had a number of seizures today that are different than before. She is sitting on the floor watching TV or playing toys, and she just falls right over. Plop, just like that, and then sits back up. Poor thing. She just looks at me with this expression like "What the .... ?"
Today we go up to the second dosage level of her Keppra. Hopefully it will start kicking in soon.
Something fun, tonite my Monkey and I are going to a Ducks game. (NHL hockey game) We got the tickets free from United Cerebral Palsy. I am excited to spend time with my boy, he's such a sweetheart. I imagine I will be talked into buying overpriced cotton candy and soda. :)
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
2 comments:
Have fun at the hockey game!
Your winter festival sounds awesome! I can't believe that you actually bring snow in! That is so cool! Being here in Michigan, in a month or two I'll be happy to send you lots of snow! It gets really old, really fast!
I hope and pray that Peanut's seizures can be brought under control really soon! Poor girl! Hugs to her and you!
Yeah I'm trying to decide if I dare commit to helping at the boys school now that I have nursing for Jax. I don't want to bite off more than I can chew.
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