I am throwing a House Party tonite! Woot Woot! :) It is through HouseParty.com and I am excited. I got a Wii Your Shape game, the new Jenny Mcarthy game, to try. A bonus dance party game, and a bunch of Jello Mousse Temptations to try! They send the spoons, napkins, and even sweatbands!
Of course, we are also having beer and drinks and appetizers and yummies. Afterward, my friend's brother is in an AC/DC cover band playing at a local dive bar.
This is going to be a fun night! My mom friends (combining my PTO group and my Cerebral Palsy group), lots of drinks, music, and a late night. I am sure I will regret it in the morning. LOL
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
Saturday, January 9, 2010
Friday, January 8, 2010
What an afternoon!
When I opened the door to let Peanut's nurse in, all three dogs ran out. Sometimes they go out the door and I yell get back here, and they do. That's it. Today, all THREE ran out. And kept running. The boston terrier ran to the neighbor's yard, to see their dog that was tied up outside. I grabbed her, handed her to Peanut's nurse, and ran after the other two. They ran towards the busy street. And kept running! One turned the corner, and I managed to grab her collar. The other ran across the four lane street, literally in between cars. I thought for sure she was going to get hit. Then she kept running, and ran down the block. I couldn't chase after her, because I had the collar of the other. These dogs each weigh 35 pounds, so I couldn't very will pick her up and run. Not to mention I was in my flip-flops, and had a hand full of mail. Of course Peanut's bus pulled up right then to drop her off, so her nurse couldn't run with me. I went home with the one dog by the collar, to get the car and chase the other down. She can running back SO fast, and in the house. I think she must have almost gotten hit, because she was terrified. I was PISSED and relieved, at the same time.
Then I went to Monkey's school, to pick up him and a friend. The friend was missing. It took 15 minutes and the entire school staff to find him hiding in the bushes with another boy. The kid who I was supposed to pick up, decided he wanted to go home with the other kid, instead of Monkey. I was on the phone with his mom hysterical, she was hysterical. The school was ready to call 911. Finally someone saw them in the bushes. Holy CRAP that was scary. We had two attempted kidnappings right before Winter Break, on the street one over. So we are all on high alert. I don't even need to mention how pissed Monkey's friend's mom was when she got here. The friend was still giggling, thinking it was funny. I told him "You better wipe that smile off your face, your mom is PISSED. I would not be laughing when she gets here if I were you." She called me a bit later to apologize for him, and let me know that his butt was beat and he would NOT do that again.
Oh my gosh. So I decided that I am not making dinner, I am ordering in pizza. I have a party here tomorrow for about 12 other moms. I was supposed to spend all afternoon cleaning and getting ready. Instead I spent the afternoon trying to relax and catch my breath!
Then I went to Monkey's school, to pick up him and a friend. The friend was missing. It took 15 minutes and the entire school staff to find him hiding in the bushes with another boy. The kid who I was supposed to pick up, decided he wanted to go home with the other kid, instead of Monkey. I was on the phone with his mom hysterical, she was hysterical. The school was ready to call 911. Finally someone saw them in the bushes. Holy CRAP that was scary. We had two attempted kidnappings right before Winter Break, on the street one over. So we are all on high alert. I don't even need to mention how pissed Monkey's friend's mom was when she got here. The friend was still giggling, thinking it was funny. I told him "You better wipe that smile off your face, your mom is PISSED. I would not be laughing when she gets here if I were you." She called me a bit later to apologize for him, and let me know that his butt was beat and he would NOT do that again.
Oh my gosh. So I decided that I am not making dinner, I am ordering in pizza. I have a party here tomorrow for about 12 other moms. I was supposed to spend all afternoon cleaning and getting ready. Instead I spent the afternoon trying to relax and catch my breath!
Thursday, January 7, 2010
Houston, we have poop!
I gave Peanut some milk of mag yesterday ater school. No poop. Gave her more four hours later. No poop. She got her normal Miralax, one tablespoon (three teaspoons). Put her to bed.
Woke up to a poop explosion! It was gross. I hope she feels better today! :)
Woke up to a poop explosion! It was gross. I hope she feels better today! :)
Wednesday, January 6, 2010
It was nothing.
Her ears were a little waxy, but they always are. He said her nasal passages looked slightly inflammed. That's it. She still hasn't pooped since Sunday morning though, so I went out and bought Milk of Mag. Gave her a teaspoon and will repeat in 4 hours if still no poop. I hate that even the act of pooping can cause my little girl so much problems!!
Sorry for the delay in updating. I had an allergic reaction to something at the walk-in clinic. My eyes were watering like crazy and I got a horrible migraine. I slept all evening and night, took the kids to school this morning, and slept again. It's almost gone now. We went to lunch with some friends after school and us moms had a couple of beers. That always makes things better. ;)
Sorry for the delay in updating. I had an allergic reaction to something at the walk-in clinic. My eyes were watering like crazy and I got a horrible migraine. I slept all evening and night, took the kids to school this morning, and slept again. It's almost gone now. We went to lunch with some friends after school and us moms had a couple of beers. That always makes things better. ;)
Tuesday, January 5, 2010
Headed to the Walk-In clinic
I got a call this morning from Peanut's teacher, and I could hardly hear her over someone screaming. Peanut had a small seizure, but then started screaming and had been inconsolable for almost 45 minutes. I went to get her and she wasn't screaming anymore, but she surely wasn't happy. Putting her in the car, securing her wheelchair on the lift, she was crying again.
We just switched pediatricians. I am SO nervous about this, and I wanted to meet her and introduce her to my Peanut when things were status quo. Not when something was wrong. She doesn't have any openings today, but their walk-in opens at 1:00. I just printed her medical sheet - meds, allergies, specialists, important hospital/er/etc dates. I'm nervous about taking her somewhere new and trying to explain her to someone quickly.
I'm sure nothing serious is wrong. Right now she's sitting in the living room watching LazyTown. Not crying, but not laughing at the show that always makes her belly laugh. She's been having poop problems, so I'm going to see if they'll do an xray of her belly. Also check her ears and throat, and do a urine dip. I'm sure it's something simple, but it does suck when your kid can't tell you what's bothering them!
We just switched pediatricians. I am SO nervous about this, and I wanted to meet her and introduce her to my Peanut when things were status quo. Not when something was wrong. She doesn't have any openings today, but their walk-in opens at 1:00. I just printed her medical sheet - meds, allergies, specialists, important hospital/er/etc dates. I'm nervous about taking her somewhere new and trying to explain her to someone quickly.
I'm sure nothing serious is wrong. Right now she's sitting in the living room watching LazyTown. Not crying, but not laughing at the show that always makes her belly laugh. She's been having poop problems, so I'm going to see if they'll do an xray of her belly. Also check her ears and throat, and do a urine dip. I'm sure it's something simple, but it does suck when your kid can't tell you what's bothering them!
Monday, January 4, 2010
2009 - a review!
I can't believe it's 2010. Remember when the world was supposed to come to a halt 10 years ago? I was pregnant with my Monkey boy and everyone was freaking out. I just knew it would be alright, because I had a little heartbeat in my stomach. :) So here we are, 2010 ... so what better to do than wrap up 2009?
January 2009 - We took a family trip to Santa Barbara. We went to the zoo, the aquarium, natural history museum, and the beach. It was a lot of fun! My Peanut became a pro at taking her socks off ... although not the conventional, boring way!
February 2009 - Not much happened this month. We like quiet times! :)
March 2009 - Monkey had to make a solar system project in 3rd grade. Peanut go her big girl bed!
April 2009 - We got annual passes to the local zoo, and I took this cute picture of the two most amazing kids!
May 2009 - Peanut had Special Olympics at her school. The general ed kids were matched up with the special ed kids. It's a HUGE deal at her school, and I just love it every year! This is also when we had our awesome photo shoot through Littlest Heroes!
June 2009 - Peanut and I were lucky enough to attend the 2nd Annual Convention for Children with Microcephaly! This was an absolutely amazing experience. I wish all these families could live in one little city so we could all be friends. It was truly incredible. We were able to meet Schuyler, whose dad writes about Fighting Monsters with Rubber Swords!
School was over, summer began, and with it came the first of many pool parties at friends' houses. My Monkey boy turned 9 the end of June. Happy birthday!
July 2009 - This was a busy month. Peanut started it off by getting a virus that made her vomit past her fundoplication and become dehydrated. We spent a few days in the hospital getting her back to baseline.
During this time, we had tickets for the circus! Monkey and I went while Daddy spent some time in the hospital with Peanut. It was a lot of fun! After she was released from the hospital, my Monkey and I went to Disneyland for the first time since he was teeny. He LOVED it, and we got our first annual passes.
August 2009 - Peanut had to be admitted overnight for an MRI of her spinal cord. They were looking for a tethered cord, syrinx, or chiari malformation. The MRI came back normal thank goodness. She and I had to right through the hallways between the operating rooms to get to the pre-op place, so we had to gown up! Check out that awesome snuggly blanket from Lacey at Jaxson's Blankies!
August also brought my sister's wedding! She got married in the courthouse and then had a reception afterwards. The downside to August was the start of Peanut's epilepsy. On the 28th she had a massive and long-lasting grand mal seizure. A trip via ambulance to the ER brought us the epilepsy diagnosis and started us on the anti-epileptic drug journey.
September 2009 - This was a rough month, as Peanut had her Mitrofanoff surgery. It was the hardest recovery she has had from any of her surgeries. Months later I can truly say it was the best thing we did. It has made life so much easier!
September was also the first day back to school! Monkey entered 4th grade, and Peanut entered 1st. Us moms were thrilled for summer to be over, and ready for a mimosa breakfast at the pier!! :)
September was a busy month. Peanut had a sedated EEG, which showed lots of seizure activity.
October 2009 - The beginning of this month was rocky, as Peanut was still healing from her Mitrofanoff surgery. She had a leg bag for a long time, waiting for the Mitrofanoff to heal. Then came learning to catheterize through it. As I said, it was tough but it was worth it.
The month improved tons, as Peanut turned SIX in the middle of October!! :) Following that was Halloween, which is always fun.
November 2009 - We had Peanut's belated birthday party. Due to the Mitrofanoff the end of September, we decided to postpone her celebrations until she was feeling better.
In November, Peanut had another trip to the hospital for an MRI. This one was of her brain, because the EEG showed that all her seizures are starting from one specific spot. The neurologist wanted to be sure that there was nothing weird there. The MRI showed no cause for her seizures, leading to the idiopathic epilepsy diagnosis. Shortly after this hospital stay, we had a trip to the ER due to an allergic reaction to Lamictal.
December 2009 - Started with a bang when our Boston Terrier decided to fight with our Manchester Terrier. The resulting head wound caused an abcess which had to be surgically cleaned, and she came home with drains in her head. Ick!
Christmas came quickly, and then our 11th wedding anniversary on New Year's Eve.
Welcome to 2010!!! I hope it's a healthy, happy, and wonderful year for all our friends. I hope for less hospital stays, less ER trips, and many great memories!
January 2009 - We took a family trip to Santa Barbara. We went to the zoo, the aquarium, natural history museum, and the beach. It was a lot of fun! My Peanut became a pro at taking her socks off ... although not the conventional, boring way!
February 2009 - Not much happened this month. We like quiet times! :)
March 2009 - Monkey had to make a solar system project in 3rd grade. Peanut go her big girl bed!
April 2009 - We got annual passes to the local zoo, and I took this cute picture of the two most amazing kids!
May 2009 - Peanut had Special Olympics at her school. The general ed kids were matched up with the special ed kids. It's a HUGE deal at her school, and I just love it every year! This is also when we had our awesome photo shoot through Littlest Heroes!
June 2009 - Peanut and I were lucky enough to attend the 2nd Annual Convention for Children with Microcephaly! This was an absolutely amazing experience. I wish all these families could live in one little city so we could all be friends. It was truly incredible. We were able to meet Schuyler, whose dad writes about Fighting Monsters with Rubber Swords!
School was over, summer began, and with it came the first of many pool parties at friends' houses. My Monkey boy turned 9 the end of June. Happy birthday!
July 2009 - This was a busy month. Peanut started it off by getting a virus that made her vomit past her fundoplication and become dehydrated. We spent a few days in the hospital getting her back to baseline.
During this time, we had tickets for the circus! Monkey and I went while Daddy spent some time in the hospital with Peanut. It was a lot of fun! After she was released from the hospital, my Monkey and I went to Disneyland for the first time since he was teeny. He LOVED it, and we got our first annual passes.
August 2009 - Peanut had to be admitted overnight for an MRI of her spinal cord. They were looking for a tethered cord, syrinx, or chiari malformation. The MRI came back normal thank goodness. She and I had to right through the hallways between the operating rooms to get to the pre-op place, so we had to gown up! Check out that awesome snuggly blanket from Lacey at Jaxson's Blankies!
August also brought my sister's wedding! She got married in the courthouse and then had a reception afterwards. The downside to August was the start of Peanut's epilepsy. On the 28th she had a massive and long-lasting grand mal seizure. A trip via ambulance to the ER brought us the epilepsy diagnosis and started us on the anti-epileptic drug journey.
September 2009 - This was a rough month, as Peanut had her Mitrofanoff surgery. It was the hardest recovery she has had from any of her surgeries. Months later I can truly say it was the best thing we did. It has made life so much easier!
September was also the first day back to school! Monkey entered 4th grade, and Peanut entered 1st. Us moms were thrilled for summer to be over, and ready for a mimosa breakfast at the pier!! :)
September was a busy month. Peanut had a sedated EEG, which showed lots of seizure activity.
October 2009 - The beginning of this month was rocky, as Peanut was still healing from her Mitrofanoff surgery. She had a leg bag for a long time, waiting for the Mitrofanoff to heal. Then came learning to catheterize through it. As I said, it was tough but it was worth it.
The month improved tons, as Peanut turned SIX in the middle of October!! :) Following that was Halloween, which is always fun.
November 2009 - We had Peanut's belated birthday party. Due to the Mitrofanoff the end of September, we decided to postpone her celebrations until she was feeling better.
In November, Peanut had another trip to the hospital for an MRI. This one was of her brain, because the EEG showed that all her seizures are starting from one specific spot. The neurologist wanted to be sure that there was nothing weird there. The MRI showed no cause for her seizures, leading to the idiopathic epilepsy diagnosis. Shortly after this hospital stay, we had a trip to the ER due to an allergic reaction to Lamictal.
December 2009 - Started with a bang when our Boston Terrier decided to fight with our Manchester Terrier. The resulting head wound caused an abcess which had to be surgically cleaned, and she came home with drains in her head. Ick!
Christmas came quickly, and then our 11th wedding anniversary on New Year's Eve.
Welcome to 2010!!! I hope it's a healthy, happy, and wonderful year for all our friends. I hope for less hospital stays, less ER trips, and many great memories!
Friday, January 1, 2010
Happy anniversary and New Years!
We got married on New Year's Eve, eleven years ago. Wow! Eleven years sure makes me feel old. :) We just got new cell phones, so we said no big presents for our anniversary (or our birthdays, which are both in January). We don't usually go out on our actual anniversary, because everything is so crazy for New Year's. So we stayed in with our kids! I rented Julie & Julia, which was great! We had appetizer dinner - coconut shrimp, meatballs, artichoke dip, chips and salsa. My parents came over with a blueberry pie and ice cream for dessert, and to wish us a happy anniversary.
Saturday night we are going to a movie and dinner. A real date, wow! :) Oh, and my dear husband brought me home these flowers after work yesterday. They smell so good!
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