Saturday, November 6, 2010

Heading to the hospital in the morning ....

I am nervous and excited and dreading this admission. I am excited because finally it seems like we might get some answers about Emily's seizures and what we can do to stop them. I am nervous because the neuro says we will be backing off and then cutting all three seizure meds probably, in order to get her to seize a lot and get good information. He told me that, with a warning that cutting all three seizure meds very well may put her into status but it will be a controlled environment or something, and that's okay. Ugh. It makes me sick just thinking about it.

We have to be there at 10am tomorrow. We are staying anywhere from 1-5 nights. Which means I have to pack for five nights, since it's far from home. My husband can't come because he has to work every day, and take care of Jacob. So I will be really alone there. I am packing LOTS of snacks and toys and movies and clothes and stuff. I don't know how I'll even get all our stuff in the hospital in one trip!

So ... I will update as I can. I have heard there is wireless access in the hospital, so I am taking my laptop. Hopefully I can get online at some point. I will at least be able to Facebook from my phone, if nothing else.


Before we go, I had to share these two pictures. Emily and I went to CHOC last week to visit sweet Ella, who is there for her fourth round of chemo. She evidently hates when babies cry or scream. Well, Emily screeches when she's excited lately. So we got her laughing while they were both sitting in the crib, and Emily started screeching .... which led to Ella crying! Poor thing. It was funny and sad at the same time.

I will keep you all updated! Pray that Emily seizes enough for them to get good EEG information without anything severe needing to happen. Pray that her MRI and PET scan give them good mapping of her little brain. Pray that we leave there with some sort of plan as to what to do with Emily's seizures!!

14 comments:

Alison said...

I hope it all goes well and that you get a lot of information out of it. Will definitely pray that nothing severe happens!!

rhiannenlouise@yahoo.com.au said...

Sending prayers for you and Emily, from Australia!
Lets hope it's a quick and efficient hospital stay!
The photos of Emily and Ella are hilarious - Poor Ella!

Lacey said...

Ugh, mentioning status just scares me to death! But I guess Jax's happened on seizure meds, and her's would probably stop with restarting meds. I hope you get some good answers. What hospital are you going too? I hope I can get to this seizure clinic when we come down with Jax!

Denise said...

Good luck tomorrow. Just so you know, I NEVER get everything in to our room in one trip. Usually I bring what I can the first trip and then while the nurses are getting her settled in a checking vitals, I sneak back down to get everything else. Feel free to text while you are there if you are bored. I will be at the hospital till Monday or Tuesday. By the way, this is round 5 for Ella (please don't make me redo this round!!)

Zoey's mom said...

Sending you with prayers.Hoping that I didn't talk the place up too much and it it as comfortable and uncomplicated,as a hospital can be.Will be waiting for updates on sweet Miss Emily.


*And Zoey's little onesie,tutu outfit came from Reagan's mom Tera,via Tera's very talented mom!!

Christy said...

I will be thinking of you and Emily and praying that all goes well. I hope they are able to get lots of answers so Emily can have less seizures.

And reading about your packing... I can so feel you. Every time Harlie goes in, I move in the room and it takes forever to load up to leave! But when you are there by yourself, you can't just go and get what you need. It is so hard being alone in the hospital with your child. So draining in every way!

Know you are in our thoughts!!!

Much love,
Christy

Michelle and Sean said...

That does sound so scary! I hope they can get the info that they need and figure out what to do for her!!

Keeping you all in our prayers!

Love the pics so so cute!!

Colleen said...

I will be praying for you and Emily and that you get a plan going for her seizures. Keep us updated!

SECRET PEPPER PERSON: said...

Praying!

Alicia said...

I will be praying for good tests and results that lead to a plan on how to deal with these awful seizures. I hate that you are there with Emily alone and I wish I lived closer so I could keep you company.

P.S. I LOVE that both our girls were Minnie Mouse for Halloween. They are the cutest I have ever seen!

The Fluck Family said...

will be thinking of you...

Debbie said...

I hope things are starting out smoothly...

praying you get answers and your stay goes quickly!

Hugs...

The VW's said...

Thinking of you and praying for you both! I hope this stay goes quickly and you are able to get some answers and solutions!

Those pics of Emily and Ella are adorable! Poor Ella.....Gavin often cries when another child cries or squeals too. So sad, but so cute!

Hang in there! Big Hugs!!!

Jenny said...

Love you and Emily! Good luck and of course, praying for you guys!