Heading to the hospital in the morning ....

I am nervous and excited and dreading this admission. I am excited because finally it seems like we might get some answers about Emily's seizures and what we can do to stop them. I am nervous because the neuro says we will be backing off and then cutting all three seizure meds probably, in order to get her to seize a lot and get good information. He told me that, with a warning that cutting all three seizure meds very well may put her into status but it will be a controlled environment or something, and that's okay. Ugh. It makes me sick just thinking about it.

We have to be there at 10am tomorrow. We are staying anywhere from 1-5 nights. Which means I have to pack for five nights, since it's far from home. My husband can't come because he has to work every day, and take care of Jacob. So I will be really alone there. I am packing LOTS of snacks and toys and movies and clothes and stuff. I don't know how I'll even get all our stuff in the hospital in one trip!

So ... I will update as I can. I have heard there is wireless access in the hospital, so I am taking my laptop. Hopefully I can get online at some point. I will at least be able to Facebook from my phone, if nothing else.

Before we go, I had to share these two pictures. Emily and I went to CHOC last week to visit sweet Ella, who is there for her fourth round of chemo. She evidently hates when babies cry or scream. Well, Emily screeches when she's excited lately. So we got her laughing while they were both sitting in the crib, and Emily started screeching .... which led to Ella crying! Poor thing. It was funny and sad at the same time.

I will keep you all updated! Pray that Emily seizes enough for them to get good EEG information without anything severe needing to happen. Pray that her MRI and PET scan give them good mapping of her little brain. Pray that we leave there with some sort of plan as to what to do with Emily's seizures!!