The convention is going great, it is so much fun! We have met some amazing kids and their families. Today we see Dr. Dobyn's for our appointment. We are hoping that he has some answers for us about Peanut. No one is able to figure out our mystery girl! :)
The next presentation is getting ready to start and I need more coffee before we go in. I will have a ton to post when we get home!
Oh and Becky if you are reading this .... the first night there was a slideshow of all the pictures everyone had sent in ahead of time. Right in the middle of the presentation were a bunch of beautiful pictures of Ben, with his dates written and a beautiful tribute to him. I broke down into huge tears at that point. Your sweet Ben will NEVER be forgotten! And just so you know, I asked Jenniffer (the lady in charge of Childrenwithmicro) and she is going to send you a copy of the slideshow. :)
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
3 comments:
Okay, so now I'M crying. Thank you for thinking of me and my sweet Ben. I miss him so much I can't even stand it. I woke up at 3am this morning thinking about how it's father's day and how hard it will be today without him. I would LOVE to see the slideshow. WOW! Can't wait to hear all about Dr. Dobyn's.
So glad to know you are having a great time!
So glad that you are having a good time at your convention.
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