We are headed in this afternoon for an "urgent" GI appointment. It is not with our normal GI, it is with someone I have never heard of. I hate that. But, here's the deal. Peanut's g-tube was placed when she was 10 months old. That was almost 6 years ago! At that time, it was down low, near her belly button. As she's grown, it's moved higher and higher. Now it's way up high, right under her rib cage. The problem is that when she sits up, her ribs are ON it. Like, pushing down on it. The button is even getting stuck, I guess in her ribs? I don't know ... but sometimes it's really stuck. You can't move it at all, can't twirl it or anything.
I assume that it will have to be moved eventually? I don't know, but here we go to GI to find out.
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
6 comments:
Oh my. Hope the GI appointment goes well. Can't wait to hear the outcome. Ivey's tube has moved up over the years too. It'll be interesting to hear what you find out. That's one of the reasons I love our blogs!
Happy Easter!
G
I hope your appointment went well! I never really thought about it moving as they grow! Hope the fix is easy for you guys! Have a wonderful weekend! Love and Hugs!!!
I hope the appt. goes well even though you will have to see a different doc. I hope they can adjust the location of the g-tube easily. That's never happened to us, but Isaac is a slow grower. Have a great Easter weekend!
Wow thats interesting. I've never seen a tube "moved"
Please tell me you got our package! I'll be ticked if its lost.
Wow, that's crazy! Praying the appointment goes well. <3
Wow! Keep us posted on how that goes. Bummer.
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