We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
Sunday, April 11, 2010
Abilities Expo
This is the third year in a row we've gone to the Abilities Expo. It is SO fun! I am always blown away by the equipment and opportunities available to the disabled. We watched a guy with no use of his arms, play table tennis. Not only play table tennis, but win over most of the able-bodies people who played against him! We also were thrilled to again see Aaron Fotheringham attempt a back flip in his wheelchair! Last year we watched him do it successfully, this year he missed the landing. But none the less amazing!! :)
We talked to quite a few companies about Augmentive Communication Devices, and I feel like we have a good idea of what direction to go in with Peanut. I am going to schedule a consultation appointment with ATEC soon to get her evaluated. I think she will do best with a large Dynavox machine with a keyguard, or an EyeMax eye gaze system. Either way, I am excited to try it out with her!
We also got a chance to talk to the Sleep Safe Bed company CEO. I told him that our bed is in the process of being denied, according to our insurance. He gave me some great tips, and then had me to talk to a very knowledgable woman. She said to give her name and number to our insurance company, if they want more information from her. So cross your fingers that we can get Peanut's bed soon!
It was a fun day. We met up with two other families I am friends with. It's always good to see familiar faces and their kids. It was a fun day! I would highly recommend anyone who can attends one of the Abilities Expos. They are awesome!
Subscribe to:
Post Comments (Atom)
4 comments:
Oooh! I want a Sleep Safe Bed for my daughter! I am getting ready to navigate that road... Any tips?
What?!! Abilities Expo?!! Wow, what a great thing! I had no idea.
How awesome. I am SO glad that you got to go.
Love, Bree
Great post!
We have you on our blogroll now! :) Thanks for supporting us.
Sounds like a good day. We have an expo over here in the UK next week and I'm looking forwards to it.
Post a Comment