My beautiful sweet Peanut woke up at 3am, crying and in pain. They gave her chloral hydrate, she didn't fall asleep. They gave her tylenol with codeine, she didn't fall asleep. They finally came in with diladin (something like that). It stopped her pain, but still didn't put her back to sleep. The nurses are all amazed that she's still awake.
Awake enough to pull out her IV with her teeth. In the OR they placed one in her right hand, which is her chewing hand.
Then she grabbed the catheter in the new stoma, and pulled the catheter from it's adapter. So it's broken, we're waiting for the urologist to come figure out what to do.
I am so tired, and stressed out, and they just told me we're getting a roommate. A tiny baby. The idea of kids having to share rooms is so stupid. No one ever gets sleep, because if one wakes up it wakes up the other.
They should really serve margaritas in the cafeteria!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
9 comments:
I am so sorry for your sweet Peanut. And for you too. You are both in my prayers.
And I agree, kids having to share a room is not conducive to anyone healing and getting better. Not smart!
Oooo. Margaritas in the cafeteria. Great idea! Sorry you guys had a bad night. Praying for you guys!
that's ridiculous to put a baby in your room as well... wow, i am so sorry!!! (((HUGS)))
So sorry things are tough, you definitely need a private room. Praying that peanuts pain gets better and she can rest
PMP! Maybe you should put it in the suggestion box! It would certainly make parents more laid back and maybe easier for the staff to deal with! I hope she settles down and leaves her various paraphenalia alone long enough to heal! Been thinking of you guys.
I'm sorry to hear that she is in pain and not sleeping well! Poor Peanut and Poor Momma! I pray that things get better! HUGS!!!
Oh, no.
I'm praying, too.
I'm so sorry. I love that you still have some sense of humor in the situation - a couple of happy hrs per day sounds like it would really improve conditions there. I'm praying. I cringed, reading about the IV and all.
Oh my! Sorry to hear that Peanut is in so much pain, putting up souch a fight and that you are at your wits end! Hope that Peanut feels better soon. And that you are able to get some much needed rest.
Prayers coming your way.....
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