We were sent to the regular pediatric floor, and they felt too nervous doing the sedation on my Peanut. Combined with her metabolic disorder making her need an IV, the double dose of sedatives, and her medical history - they decided to do the EEG in the PICU. Off we went to a private little room there.
It took two tense tries to get an IV in, and then we started. She slept for only 30 minutes, it was supposed to be a 45 minute EEG. The tech made me hold her still on the bed for the last 15 minutes. Uhm, not a great test then. She was moving and lifting her head and trying to sit up.
She didn't have any obvious seizure activity during the test of course. That would go against True Peanut Order! LOL She did, at the end, have weird movement. Who knows if it was a seizure or the sedation though? She kept turning her head to the left and twitching it a few times. Then straightening to look at me, then doing it again. She was really sedated still though, eyes rolling all over.
We see the neurologist on Tuesday, so we'll see what the test showed then!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
3 comments:
so glad to hear that the test went smoothly. Praying that the neuro will have some answers.
I'm glad to hear that the EEG went well! I bet you are glad that it's over! Hope you get good test results! HUGS!
Glad its over and your home. It can sometimes be hard to distinguish between seizures and just being squirmy.
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