Officially diagnosed with "Seizure Disorder"

I am sad. Heartbroken, pitiful, pathetic, and sad. :(

Peanut's EEG definately showed seizure activity, which is scary to me since we didn't notice any seizures during the 45 minute test. That means she is having many more than we originally thought, that we aren't even seeing. On the EEG, they were localized seizures but then they spread.

For those of you with the background to know and understand, here is what the EEG says.

There were definitive sharp waves existing over the left hemisphere, with a broader field and mainly encompassing the C3-P3 electrode at times with spread to the left frontal head region, including the whole left paracentral head region. During sleep, the above-stated left hemispheric paracentral sharp waves also had a tendancy to spread to the right homologous head region at the right paracentral head region and increased significantly in abudance. No pathalogical showing was seen during wakefulness. This is an abnormal largely asleep and brief awake EEG tracing, due to the left hemispheric epileptiform discharges, and revealed more localized to the left centroparietal head region and had a tendancy to spread to the right homologous head region, as well.

The above findings are most consistent with left hemispheric focal absence seizure with a tendency to be secondarily generalized.

SO. The neuro says that this means even on the Neurontin as at the higher dosage she is still having a lot of seizures we aren't seeing. He said that the Neurontin is probably enough to prevent the focal seizures from turning into generalized, but not to stop them completely. We are to keep a log of all seizure activity, including the staring spells she is doing frequently. If we notice that they are happening frequently still, we will either up her Neurontin or add another seizure med.

In the meantime, he is ordering an MRI of her brain. We did the spine last month, but haven't looked at the brain in a few years. He says there is always concern when seizures start out of nowhere, but even more when they are localized. You have to wonder what that little piece of the brain looks like. Could there be a lesion, a vascular formation, anything. Given that she is having surgery next week, the MRI will probably not be for a few weeks.

She seriously can't get a break right now! We had two years of hell, and then three great years. We said how wonderful she was doing ... no hospital stays, no surgeries, nothing. Now so much is happening at once.

Like I said, I just feel SAD. :(