We are headed out in a few minutes for a VCUG. They suck. :( The plan is to lay her on her back and wrap her tightly so she can't move. Oh man ... she LOVES that part. Then they xray her empty bladder. A catheter is then placed and her bladder filled, which always makes her scream. Then we wait and watch as she urinates. Normally, once the catheter is removed, a person pees. Not my peanut. We have laid there as long as three hours waiting for her to pee. Once she pees, they measure how much urine was retained and not peed out. The entire time they are looking for signs of urinary reflux.
This test sucks. There will be a lot of screaming and crying today. :(
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
6 comments:
These tests are so not fun!!! I'm so sorry that Peanut and you have to do this today! Hope that it goes as well as it possibly can! HUGS!
Yeah. The VCUG is a tough one because you never really know how long it is going to take. I also hate the Urodynamics exam.
You both are in my thoughts and prayers today.
Marissa has had two VCUGs and they are awful. Especially the first one, where they could not get the catheter in for a full 20 minutes!! Turns out, they were trying to put one in that was too big! UGH! I swore I would never let that happen again.
Just plan lots of snuggle time with Peanut after you get home.
Ugh Kennedy's had a couple of those. They DO suck. Praying for you all!
Oh I hope everything went ok and it wasn't to traumatizing for her.
I can't even imagine what a pain this is for both you and Peanut. These kind of days are never easy.
We are planning to be to SoCal during the last week of August. We were going to stay in Carlsbad, but we need something more affordable and closer to Coronado. Is that anywhere close to you?
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