I am so excited, we are going to the Foundation for Children with Microcephaly convention! It is being held less than 15 minutes from our home! I cannot wait. I have been talking with a Mom who is involved through email, and am so excited to meet someone with similar circumstances.
The best part is getting to meet Dr. Dobyns and having him go over Peanut's issues with us. She is undiagnosed overall, and I am always looking for answers. Perhaps he could be the key to unlocking the mystery that is my Peanut! :)
I have also been talking with the local Mom about helping as a state representative. How great would it be to get to know so many other people with kiddos like mine!
Are any of you attending this convention? I would love to meet some of my blog friends!!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
4 comments:
Wow, I just went to the website and it looks like a great organization. How exciting that you and Peanut get to go. Marissa was diagnosed with Microcephaly and, while she is mildly delayed, we still don't know what impact this will have on her life in the future. She developed IUGR around 31 weeks gestation and I also had a two vessel cord, so we are thinking that is the cause, however, we just don't know. And may never know. From reading, it looks like that is the case for most of the kiddos. We are in the same boat as you as we have no primary diagnosis for Marissa. Just "multiple congenital anomalies".
I hope and pray that you can find some answers and some new friends to boot!
Awesome!!!
Wow, that is so cool, I'm excited for you to meet people, thats always nice.
It is so encouraging to be surrounded by other parents of our special kids! Have fun!
Post a Comment