Tuesday, March 22, 2011

Ugh ....

It's been a long time since I posted again! I wish I could come up with an extra 30 minutes every day to sit and post.

Emily has been in and out of the hospital. Right now she's inpatient. She has air in her bowel wall and possibly her chest, she isn't tolerating feeds, she's losing weight, she has blood in her stool, etc.

The GI thinks it's related to whatever mitochondrial disorder she may have, otherwise just an overall gut shut down. He is hopeful that it is temporary.

In the meantime, her VNS was supposed to be placed Friday. Surgery has been postponed indefinitely. :(

Please pray for Emily. She needs to get better quick!

20 comments:

Colleen said...

Oh my goodness, Emily will be in my prayers! Hang in there.

Alison said...

Oh no. Definitely praying for your precious girl.

Staci said...

Hugs for you and Emily!

Rebecca Jackson said...

Praying!!!!!!!!!

Elizabeth said...

I am so sorry. I will light a candle for Emily and for you -- for strength and healing.

Junior said...

We are praying for Emily and sending big hugs.

Hyper Aspie said...

Oh Emily, you worry us so!!! You're in my prayers little one! xx

Jamie said...

Waves of good thoughts and prayers from CT. Oh Sweet Girl. :(

Melissa said...

Praying for your sweet Emily. And many many ((((hugs)))) to you. Take care

Tracy said...

I will definitely be praying for Emily.

Zoey's mom said...

Hey my friend...just felt that even though I have been leaving messages on FB,I should also come here and bring you love and prayers and good vibes for you and sweet Emily.So hoping you will NOT be there when I come to see Klein.Praying you find home soon.

Donna said...

Saying prayers for Emily and for your strength. :(

The VW's said...

Thinking of you both, and praying! Hugs to both of you!

Team Carter Jay said...

Oh my gosh...I just came to check in. I'll definitely be praying for little Peanut. Please update us again when you can!

Lucia said...

Sending good thoughts for your sweet little girl! I believe your girl is a fighter!

Buttercup said...

Keeping all of you -- especially sweet Emily -- in my prayers.

Christy said...

Oh no!!!! I am really hoping that things are better now. An overall gut shut down sounds horrible. She must be miserable! My heart goes out to you. I'm praying that you're home now or getting ready to go home.

xoxo,
Christy

Jenny said...

definitely in our prayers. love that little emily -- and you.

Cathy said...

By the way, in all your spare time, we need pictures of that precious room! I am so glad you are home. If you need bio-patch please pm me and we can arrange. do you use the spiral tubing on her line. It has been answered prayers to us. Seems we kept pulling her.

SECRET PEPPER PERSON: said...

So sad she is going thru this...