Saturday, January 8, 2011
Some relief at long last
Emily is going to step three of four tomorrow on her Banzel titration. That means we are just on step two right now .... and KNOCK ON WOOD ... she is doing awesome! She has had less seizures yesterday and today for sure. The only bad thing is that the side affect is sleepiness/sedation and she was feeling that today for sure. She was whiny and tired which makes her mean. I know she doesn't mean to be, but she scratches you and pulls her own hair and scratches herself, and yesterday she was BITING us like mad! She bit her daddy's finger and drew blood! She bit my head even, when I was holding her up against my chest. She had her head on my shoulder and she turned and BIT my head! Right above my ear, hair and all. Just chomped. At times it was comical, she was just like CHOMP CHOMP CHOMP. We were calling her Piranha Baby all day. Today luckily that was passed. I think it had some to do with her constipation, which she has had all week. Yesterday I finally got her to go, but it had been five days. I wonder if constipation is a side affect of banzel? I will have to google it.
Not much else is going on right now. We are still waiting to hear from Make A Wish about the dates of her room makeover. I hope it's soon, we are definitely ready!!
Tomorrow I am taking the kids to Disneyland while daddy has to work. It should be a fun day!
at 8:32 PM