Saturday, January 15, 2011
How is Emily doing?
I have come to realize that different people blog differently. Some people are able to blog daily, regardless of how busy their lives are, and keep everyone up to date. Some people blog when things are rough, because the support we get online is irreplaceable. And then some of us, when times are tough, bury ourselves in our lives and hide from our blogs. Not that I don't want to blog and tell you all how Emily is doing, but I just can't bring myself to do it lately.
How is Emily doing? The answer depends on who's asking. Most people get the answer of "She's good, thanks for asking".
The honest answer? She's doing horrible. We just had an ER trip for increased seizures and an overnight hospital stay. She had a CT scan (these new seizures are affecting her left side seriously). She had an overnight EEG.
She is now being referred to a neurosurgeon for a VNS. If you are lucky enough to not know what a VNS is, here's a link with some basic information. This is not something that will stop all of her seizures (unless we get extremely lucky, but not likely). It is something that hopefully will lower the number she has each day, and help us control the bigger/longer ones.
Right now all I want to do is grab my girl and rock her in our comfy chair and watch cartoons. Unfortunately real life gets in the way of that, so we forge ahead and try our best to deal with this f*&n seizures.
And that is how Emily is doing lately. :(
at 3:49 PM