Winter break starts today. We have no school for two weeks. It's raining, and supposed to rain for the next few days. I foresee some pajama days in our future! :) I am glad for the break from school and to just relax.
Now if Emily could just get a break from these damn seizures .... life would be good.
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
6 comments:
We too are off for 2 weeks.So looking forward to it.
I really hate that Emily is struggling even more, with her seizures.To say that sucks,is an understatement.And,I am certain the "damn" in " damn seizures" could be replaced with another wordmy personal favorite ... but we'll keep it G rated and I'll leave it at that.
I still am so disappointed in your follow up appt.Did you ever try to leave a message for the doctor like i suggested.Or go to the main web page at UCLA under neurology and email him directly.I seem to have the best results with that.That way you circumvent the oh so charming ladies at the front desk.
Thinking of you and sending Emily prayers.
Hope winter break is a lot of fun!!
So sorry Emily is still struggling with so many seizures. I was hoping that something would work for her. Still praying for ou guys.
Man, you guys get off early, we don't get off until the 22nd. Yes, they push it all the way!
Our break started today also. Junior can't wait for Abby to come hang out with him.
Sorry to hear the seizures are still a big issue. Lots of prayers that you can get some answers.
Have a great holiday.
I hear ya, it will be nice to get a break from school and therapies for awhile. I hope you can get a much needed break from those seizures!
So sorry about Emily...
Ugh, this rain. Is driving me crazy...but I keep being thankful that a.) it's NOT snow
and b.) I am not teaching for 2 weeks and could've been stuck in my classroom with 24 five year olds!
Love the decorated wheelchair :)
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