I keep sitting down to upload fabulous photos and describe the wonderful Christmas we had ... and not getting very far. Damn seizures will not give my girl any peace. So intstead I spend hour after hour just holding her in the rocking chair and watching the stupid cartoons that she loves so much. Soaking up her giggles at her favorite characters as I try not to go insane at DJ Lance Rocks. At least if we're in the rocking chair together, she doesn't fall over with each seizure.
Perhaps I can update later, when her nurse finally arrives.
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
16 comments:
Sorry she is constantly bombarded with seizures...Sadly...I know what your feeling.
Glad you had a wonderful Christmas...can't wait to see the pics!
I'm sorry. So, so sorry.
I'm so sorry! Your poor sweet girl must get exhausted by all of those seizures! Seizures STINK! Praying for her and you! Big Hugs!
RATS! I am so sorry this is happening. Excitement? I thought the Teenager was having one last night and wasn't surprised as she's been staying up late and with the Christmas stress....fatigue and illness...biggest culprits around...oh except maybe hormones. Sucks anyway you look at it.
I'm so sorry! I hope you both get a break soon from the effing seizures.
We can wait on pics, even though can't wait to see them. Just rock your sweet girls and we are praying those stupid seizures go away.
oh I'm so sorry. at least you did have a great Christmas, right? hope these seizures break soon.
So do you think UCLA is helping with the seizures? I hope she can find some relief soon! Her and Jax both!
I hope she gets a break from the seizures soon :(
I'm so sorry. I hope you can catch a break soon! Isaac has been sick so I've been hanging out with the oximeter and the suction machine. Fun times!
Hope they're gone quickly and there's a good solution for the issue.
I am so very sorry, praying that she gets some relief from those awful seizures.
Praying!!!
I'm so sorry! I hate those seizures too!! I wish they could figure out something to help her!
I can't wait to hear all about your Christmas!! Think of you and praying for Emily!
I have a peaceful image of you holding Emily in the rocking chair...
Praying for you all.
Hoping your Little Lady feels much better real soon, thinking of you Xxxx
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