We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
Wednesday, January 27, 2010
Sleep study and a rainbow.
Monkey's sleep study last night was easy. It makes me realize how much harder everything is on my Peanut, than on typical children. The taping and wires and touching of her face freaks her out. Monkey just giggled his way through it, and wanted me to take pictures and show him as we went. He said he looked like Wolverine from X-Men, while he is being transformed into something else? I don't know for sure, LOL. He woke up a number of times, the longest from 3am-4am. The tech said he didn't have extreme apnea, because we didn't have to trial the cpap. I said does that mean he had NO apnea, and he said he wasn't allowed to discuss the results. Then he said we would have to stay all day, doing latency testing and others. Then he came back and said the doctor said we could go home. So ... did they find something? Did they not? Who knows. We have to wait 7-10 days for the results.
I got home in time to help my husband get Peanut ready for school. Good thing, because her clothes were mismatched and he was not planning on brushing her hair. He says it's too hard, LOL. I asked how she did last night, he said she was up alot. I picked her up, she's hot. Temp of 101. Sick again!! She can't seem to stay healthy lately.
So I am home with two kids today. One who is showering right now to scrub the glue off his head, and the other who is sick. I think after Peanut's nurse gets here, I might go to the movies. I really want to see Extraordinary Measures, and I'm definately up for a good cry right now!
As a mood lifter, here are pictures of a rainbow out our back door the other day. :)
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4 comments:
COOL PICTURES!!! What an awesome sight!
Glad the study went well! Hope they are able to find out what's wrong and help you guys get more sleep!
Soory Peanut is sick again! Praying she feels better soon! Hugs!!!
I hope the sleep studies give you the results you are looking for. Hope Peanut gets better soon. :)
Its so funny how they expect them to sleep with all that crap on their faces!
I LOVE rainbows! Beautiful pictures!
Glad the sleep study went well and I'm praying for good results and answers as to how to help Monkey sleep. Sorry to hear that Peanut is sick again, praying she kicks it quick!
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