It is definately a hernia.

We went to the urologist this morning and of course, the lump was hardly there. I told him that it is usually there, but sometimes it's not. Thankfully I had taken pictures of it last night when it was big! He said it's definately a hernia. He had to make a hole in her stomach wall for the Mitrofanoff to tunnel through. He said if you make the hole too small, it causes strictures around the Mitrofanoff (appendix) and makes it unable to catheterize. If the hole is too big, it can herniate. So that's where we are.

For the next month I am to "milk" it back in every time I notice it. We have an appointment the first week of March. If it gets any bigger or starts to hurt her, we will have to repair it urgently. If it stays the same, it can wait a bit longer. He says it will definately need to be repaired in the near future. Ugh!

Here are the pictures I took of the hernia last night. The little black dot next to the opening was a stitch from surgery, it actually came out last night finally when I was cleaning the stoma.





She's still quite sick, unforfunately. She had a fairly large seizure in the urology waiting room, which freaked out most of the other parents. One mom, whose kid had a cochlear implant and some other issues, asked if I needed help. The other people all looked scared. Luckily it only lasted about 45 seconds. She's had a lot of head drop seizures today, and some weird mouth things going on that I assume are seizures. Nothing else big. Tonite is my husband's birthday. He and I are going to Red Lobster for dinner. Thank heavens for nursing!!