I got a call this morning from Peanut's teacher, and I could hardly hear her over someone screaming. Peanut had a small seizure, but then started screaming and had been inconsolable for almost 45 minutes. I went to get her and she wasn't screaming anymore, but she surely wasn't happy. Putting her in the car, securing her wheelchair on the lift, she was crying again.
We just switched pediatricians. I am SO nervous about this, and I wanted to meet her and introduce her to my Peanut when things were status quo. Not when something was wrong. She doesn't have any openings today, but their walk-in opens at 1:00. I just printed her medical sheet - meds, allergies, specialists, important hospital/er/etc dates. I'm nervous about taking her somewhere new and trying to explain her to someone quickly.
I'm sure nothing serious is wrong. Right now she's sitting in the living room watching LazyTown. Not crying, but not laughing at the show that always makes her belly laugh. She's been having poop problems, so I'm going to see if they'll do an xray of her belly. Also check her ears and throat, and do a urine dip. I'm sure it's something simple, but it does suck when your kid can't tell you what's bothering them!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
8 comments:
You know, when kids get backed up, it really affects siezures. They can have a ton of breakthrough siezures when they need to poop. Thats why we try to keep Jax good and cleaned out!
hope its just poop. I hate that Alex cant talk to me. Let us know whats going on.
I hope your instincts are right!
I hope it was a good appointment, and that you feel comfortable with the new doctor. And that all went well today.
Thinking of you... thinking of Peanut. Seeing new doctors, regardless of how great they might actually be, can be very daunting with our kids. It's difficult to explain anything in a "nutshell" version. So... I hope, hope it went well and of course, more than anything, hope that Princess Peanut is back to belly laughing soon.
Thinking of you guys and praying for you and Peanut.
Praying that Peanut is doing better today! It can be very scary when your child isn't able to tell you what is wrong! Hang in there! HUGS!!!
Praying for peanut! :)
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