We had a metabolics appointment last week, and Peanut was back up almost to where she was before she got sick last month. Hopefully by today she will be back to 30 pounds. We are going to discuss raising her calories a bit too. According to the diet that the dietician has her on, she gets about 600 calories a day. I know it's really low, but due to her metabolic disorder it's fine. We are going to bump it to 650 or 700 (by using more Polycose) probably. There's a fine line with her, between gaining slowly and healthily, not gaining at all, and gaining a TON too fast. We'll see how it goes!
We haven't seen any more seizure activity since Thursday night. Hopefully we won't, for a long time!!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
1 comment:
Praying for weight gain and no more seizures.
I am also praying for Marie's family. My heart is broken this morning as I read this. I am so sorry.
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