Update

The episode itself was weird. She was asleep, totally asleep. Her legs would kick wildly and violently for five or ten seconds, then she would arch her back, and her lips would pucker. She'd be fine for 30-60 seconds, and then do it again. At first we didn't think much of it, but then it kept happening.

I tried waking her up by talking to her, undressing her, wiping her face with a cold wet washcloth. She hates getting her face wet or wiped. Nothing would wake her up, and when I lifted her eyelids her eyes weren't normal. Her pupils are normally huge, they look dialated. Last night they were tiny pinpoint pupils. Hardly anything there. She wouldn't wake up for anything, she was totally limp and non-responsive.

When the ambulance got her, the seizures were over but she was still unconcious. Her breathing never stopped, she didn't turn blue, but they put her on oxygen because her breathing was shallow. They loaded her on the stretcher and off we went. When she started waking up, she was still non-responsive, but awake. She wouldn't look at anyone, when she looked in my direction there was no response. It was scary. :(

Ten minutes after getting in the ER, she was fine. Back to normal, just tired. We did tests and they came back with a UTI. They decided that the infection is what spurred the seizure, in combination with the fact that it was over 90 degrees yesterday and she doesn't regulate her temp well.

They sent us home per the neurologist, and we are going to his office first thing this morning. He told the ER doctor he's going to start her on seizure meds and we'll talk about what testing to do.

It was horribly scary. In all her years and through all her issues, I've never had to call 911 for her. Never had an ambulance ride. It was bad. :(

Please pray that it was a one time thing, and that the neuro today reassures me enough that I'm comfortable. Right now I don't want to let her out of my sight for a minute, I'm so scared!