Not much going on here, which is fabulous! :) Peanut is doing fine, everything is stable and good right now. She's back on boluses of baby food three times a day, and formula overnight. She is doing well with it. Little retching, and it really seems to agree with it. Her blood sugar levels stay much more normal in between feedings when it's baby food. Also her BM's are back to normal. When we went back to just formula, she was pooping non-stop. Now she's back to her normal constipation needing Miralax. LOL Funny the things that we call "normal"! :)
She has a metabolics appointment tomorrow. I am nervous about her weigh-in, but what can you do. I'm sure she's gained back some of what she lost last month. Cross your fingers!
Not much else going on here. Two more weeks until school starts. I actually have a ton to do before then, but day by day, it will get done.
I am taking Monkey to Disneyland on Friday, we are going to turn our summer passes into annuals. YAY! Tomorrow night I have dinner with my book club, that is always relaxing and fun. :)
I hope you are all doing well. Thanks for checking in on us, even when there's not much going on!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
8 comments:
I had such a blast on Sunday. What a beautiful city. I'd move there in a heartbeat. Ray will definitely have to look into their police force. I will get the pics up soon, I'm going in order of when we did things.
Boring is a good thing, glad Peanut is doing well. Have a wonderful time at Disney
Isn't it funny as what we define as "normal" for our kids. I am very jealous that you get a day at Disney tomorrow since I just LUUUUUV all things Disney. We are hoping though to get to disney "world not land" in March. Have fun!
YAY for boring!!! I pray that this trend continues for you!
Have fun at Disneyland! I would love to live so close to there or Disneyworld! It's such a happy place!
Have a great week! HUGS!!!
Hooray for boring!!
I am glad things are status quo with Peanut. Does miralax come in a liquid or only a powder? I am asking because Marissa has started to be a little constipated in the last week. I am going to talk to her doc but we could only find the powder.
Have a great time at Disneyland with Monkey. Gotta squeeze every last drop out of Summer!
Glad to hear that everyone is doing well! Have a great time at Disneyland and give Mickey a big smooch from us!
Your right!! Boring updates are the best!! I'm glad things are boring and happy to hear she is getting back to herself. Take care we're thinking of you guys!!
For lots of folks, "boring" is the norm. I'm glad things are working their way back to your "norm." And praying they stay that way for a while.
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