Monday, February 14, 2011

VNS consult is today

We meet the neurosurgeon this afternoon for Emily's VNS consult. Last night I (stupidly!) mentioned to my husband that she hadn't needed Diastat since Friday morning, and her seizures had been mild for the last two days. She then woke up at 4:30 this morning seizing off and on, and by 5:30 required Diastat. Now it's 9:15 and she just had three atonic (drop) seizures back to back and then fell asleep on the living room floor.

Please pray that the neurosurgeon can get her scheduled ASAP for the VNS. Even more, please pray that it will bring Emily some relief from these damn seizures!!

And just so you can see that Emily is still her smiling, amazing self in between these stupid seizures, here's a cute picture from yesterday morning. :)

6 comments:

Lacey said...

Oh I love her smile and her crazy hair!
Jax has been having more seizures, I need to make a neuro appointment for him. Damn seizures!

The VW's said...

Praying they can schedule you very soon! Love and Hugs!!! And, Happy Heart Day!!

Elizabeth said...

I am hoping that all goes well today and that you get some relief from those seizures immediately. I know that the VNS can take quite a bit of time to really kick in, so I hope that there is something to do in the meantime.

Jamie said...

Oh Sweet Girl...Madie had drop seizures for a long time! A drug from Canada Clobazam stopped them..but had a horrible effect and she was not herself. Soo I became tired of cocktails (in more ways than one..lol) and Madie is only on Depakote and LCarnatine vitamin along with her ketocal..still having Tonics here and there...:( Hang in there mama. Your guess is as good as mine..oh and love the curls..;)

Alison said...

I will be thinking of you all - I really hope this surgery is able to help your precious girl.

Lucia said...

She is so adorable with her big smile and big curly hair! So cute!