We have our Littlest Heroes Project tomorrow, in the park! I am soooooo excited. I cannot wait to share the pictures!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
Saturday, February 28, 2009
Tuesday, February 24, 2009
Bring on the Bling Bling!
I just love this picture of my Peanut in all her beautiful smiling glory! I just wanna smooch her chubba-wubba cheeks. :) (those of you with special kiddos like mine, look at that standing with mininal assistance!)
In other GREAT news - she tolerated a Z-Vibe in her mouth for ten seconds today! She let her OT put it on her lips, and then on her bottom front teeth. She even bit down on it a tiny bit.
This is huge huge! She has never tolerated anything in her mouth for ten straight seconds. I literally cried. Silly I know, over ten little seconds. Except that in OUR world, ten seconds of something in your mouth is HUGE HUGE HUGE.
This is where I remind myself that just because she did it today does not mean that she'll ever do it again. I doesn't mean that anytime soon she'll tolerate it again or more even. But here's hoping!!
Thursday, February 19, 2009
I'm baaaaack!
My computer had a seriously nasty virus and it took weeks to get it fixed. Today though, I am sitting here typing on Miss Piggy (my lapto0p is pink). I am relieved to say that all my photos were saved!!!! Thank heavens.
My peanut is doing great right now, for the most part! We have a recipe from the dietician of baby food and cereal. I mix it up at night, and we split it into three boluses during the day. Then she gets formula/fluids at night. Her recipe includes baby meat, veggies, fruit, cereal, and some extra things she needs. She is tolerating it just fine!
You cannot imagine how much I love mixing her food up. I get such a thrill every time I go to the grocery store and buy baby food. I have always wanted to feed her. Even though it's not going in her mouth, I am happy that she is getting normal food.
The only problem is that it's constipating her, even if I use prunes as the fruit eery other day. We are working on that issue.
In therapy she's doing great! We are working on walking in the reverse walker still. She still hates holding on to it, but she is great at stepping. We stand her up against the wall and let go, she is doing good at that. I'll have to take a picture soon!!
This is short because I have a ton to catch up, and so much going on. I am chairing the talent show at Monkey's school, and it is a TON of work.
I am so happy to be typing on Miss Piggy, and back here blogging!!
My peanut is doing great right now, for the most part! We have a recipe from the dietician of baby food and cereal. I mix it up at night, and we split it into three boluses during the day. Then she gets formula/fluids at night. Her recipe includes baby meat, veggies, fruit, cereal, and some extra things she needs. She is tolerating it just fine!
You cannot imagine how much I love mixing her food up. I get such a thrill every time I go to the grocery store and buy baby food. I have always wanted to feed her. Even though it's not going in her mouth, I am happy that she is getting normal food.
The only problem is that it's constipating her, even if I use prunes as the fruit eery other day. We are working on that issue.
In therapy she's doing great! We are working on walking in the reverse walker still. She still hates holding on to it, but she is great at stepping. We stand her up against the wall and let go, she is doing good at that. I'll have to take a picture soon!!
This is short because I have a ton to catch up, and so much going on. I am chairing the talent show at Monkey's school, and it is a TON of work.
I am so happy to be typing on Miss Piggy, and back here blogging!!
Wednesday, February 4, 2009
Virus
My laptop has a seriously bad virus, to the point that I might not get back "my documents". You know, the photos I've taken for the last how long?
I want to cry. :(
Just thought I would post real quick in case anyone wonders where we are. We're here, and actually tubing REAL food into Peanut! Just computer-less. :(
I want to cry. :(
Just thought I would post real quick in case anyone wonders where we are. We're here, and actually tubing REAL food into Peanut! Just computer-less. :(
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