I was supposed to go pick up a blood sugar monitor this morning from the metabolics clinic, but I got a call telling me to wait. Our metabolic doctor is out sick, and he didn't leave enough information. What numbers are too low or too high for her, how often to check, how often to report in with her numbers, etc. All he said was for them to issue me the monitor and prescription for test strips.
Hopefully he checks his email when he's home sick, since the nurse sent him one. I am nervous knowing she could be getting hypoglycemic and we don't know it. Does it explain her grouchy spells? Her retching? Or perhaps she isn't getting low blood sugar. Who knows!
I hate the thought of making her bleed numerous times a day. :(
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
4 comments:
Kennedy has hypoglycemia, you'll get used to checking her blood sugar (unfortunately?) and so will she. Kennedy just holds out a finger and lets me do it. She doesn't even bat an eye. It's amazing to me. I had gestational diabetes with Keeghan and I flinched EVERY time I had to do it to myself. I'm such a freaking baby. Our kids are amazing aren't they? Peanut will take it all in stride, just like everything else... not that it doesn't suck any less. It's just one more thing, I know.
Like our kids are just supposed to not get sick or have problems because a doc is not available. That is SO aggravating!! I hope you get the stuff you need soon.
Rough time! Glad you're home though, hang in there! Praying for Peanut:)
Oh my! The doc suspects Esther-Faith is hypoglycemic, but we're going to make some changes to her diet (more protein, more frequent snacking, etc...) before we start with the monitor.
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