She asked what meds my Peanut is on for retching and reflux. (Evidently they don't review charts before returning calls) She said that she thinks we are on the best for retching. As I was talking to her, Peanut started gagging and retching. She had been fed almost an HOUR before. She started screaming and retching and I told the nurse I would have to call her back. Thankfully her home health nurse showed up right after that to help take care of her and calm her down. I called the GI nurse back, she said she doesn't know what to suggest and she will page our GI, who is on-call this week. Perfect. Except that she thinks he'll probably want to admit her for observation and testing.
I hate admits. Although on the other hand, it's better than waiting for days and weeks and months on end at home for authorizations. Perhaps an admit is the best thing right now.
We'll see what he says! We're off to PT/OT. Hopefully he calls soon!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
1 comment:
Praying that it all goes well!! HUGS!
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