So I realized this morning that my Peanut hadn't had a seizure in a while. And I stupidly posted it on Facebook. Which of course means that she had a big seizure this evening. :( She had been grumpy all day, and had been whining and crying and flailing around for almost two hours. Her nurse couldn't calm her, I couldn't calm her. She was just distraught, but I couldn't figure out what was wrong. I ended up just sitting on the couch and holding her on my lap while she cried and fought me. Then she had a seizure. It was less than 30 seconds but it was INTENSE. Then she was sedate and sluggish, and we got her off to bed. I am guessing that the fussing before hand was the onset of the seizure. I hope that she wasn't seizing during that time. If she was, we sure couldn't tell.
I hate seizures. I even sent an email to the neuro this morning telling him how long it's been since she's had a seizure. Stoopid seizures!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
5 comments:
so sorry to hear about the seizure, we just hate them around here.
Junior can be really agitated for up to 24 hours before having a big one.
Have a very merry and seizure free Christmas
I am so very sorry. I am in tears reading this. I have followed another blog about a little one who is also having violent seizures tonight after a long time without them. Very similar. My heart is breaking for these little ones who are in so much pain. So incomprehensible!
Tonight, I am on my knees in prayer for your Peanut and all the other precious ones in the world who are suffering. I pray also for your peace and comfort in this difficult time.
God bless you and give you and your Peanut strength to weather this storm.
P.S. I would love to be your friend on FB. My full name is Alicia Cortez. If you don't feel comfortable, don't feel bad. I understand.
I'm so sorry! Seizures SUCK!!! I pray that Peanut doesn't have anymore! Poor girl! Love and Hugs!!!
I'm so sorry - not fun.
If it helps though; the grumpiness and other bits could well be more of an aura (build-up) rather than seizure itself, so she probably wasn't seizing all the time. Just feeling horrible as the seizure gathered. A friend used to describe it as a thunderstorm - horrible heavy atmosphere as the storm clouds gathered, then the seizure itself like the thunderstorm, but after that everything was cleared away for a bit (just leaving the post-ictal sleepiness and stuff).
I hope it was a blip and she now has another long seizure free period.
Tia
Merry Christmas and SORRY about the seizure. I hope you guys have a quiet and calm week with her. Thinking of you.
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