Okay, thinks I forgot about! Here I thought Thursday was going to be the "easy" day. LOL Thursday morning Peanut has her annual Adaptive PE Rodeo at school, families invited. And Thursday night is Chuck-E-Cheese night fundraiser for Monkey's school. So much for a non-busy day. ;)
I had lunch with Monkey's teacher today, and her gorgeous baby girl. They finally got a diagnosis for all her heart conditions, it's Shones Syndrome. It's not good. :( Evidently her prognosis for survival beyond one year is only about 20%. I just held her and sniffed her blond head and wanted to bawl my eyes out.
If you've been following Kayleigh's blog, you know that she passed away. Again, I sit her and want to cry my head off. I will definately be hugging Peanut TIGHT tonite!!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
2 comments:
Such sad news, we will say a prayer for your little ones teacher and her baby.
An adaptive PE rodeo, that sure sounds like fun.
Wow, I just read your previous post and had to stop and catch my breath!!! Whew!!
I will be praying for your friend and her baby. I will also be praying for your appts. tomorrow.
And praying for you to just make it through the week!
Alicia
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