We were supposed to see the endocrinologist in January for our annual appointment, but our Dr left the practice. We had to wait until yesterday to get in with a new doctor, but it was a good appointment. The new doctor was really great. Good besides manner, answered all my questions, talked directly to Peanut. Yay for that!
Her height is 95 cm, or 37.4 inches. January of 2008 she was 90 cm, or 35.4 inches. In 15 months, she only grew 2 inches. This is better than none, but is not great! Her weight was 13.39 kg, or 29.5 pounds. This is almost exactly the same as last year. Unfortunately it's bad down from two months ago, when she was 31 pounds. I wonder if we will EVER stop worrying about her growth!
We are retesting all of her hormones - cortisol, thyroid, etc. They were normal last time, but she said we need to check them annually. If anything is low, we will talk about replacing it. She told me to talk to our PT's about Peanut and the possibility of growth hormones. She said even if her levels are normal, she could get a tiny dose. This wouldn't be enough to make her grow like crazy, but would help give her more muscle strength. I've never heard of this before, so it gives me something to research.
In the end, nothing new! LOL Our peanut remains little and petite, and as we like to say, portable! :)
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
3 comments:
Portable is good! When our little ones can't get around on their own, little is great! Gavin has barely grown in the last 2 years and I really don't have a problem with it at all, knowing that he is still healthy at the same time.
I agree with Alicia... Portable is good! I wondered about the day that Esther-Faith would weigh more than her wheelchair. Now she does, and it makes it all the more difficult to carry her in her chair on the occasion that there isn't an elevator or someplace isn't accessible.
I agree 100% ladies. Portable and healthy is a good way to be. :)
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