Both kids were down to 98.x last night. Neither went to bed with a fever, and ... neither woke up with a fever!! Is it truly possible? The pediatrician mentioned that our county seems to be hit with a lesser strength of h1n1 lately.
PLEASE PLEASE let the fevers stay away. I don't want Halloween to be ruined tomorrow!!
We used to revel in the "new perfect" that was our life. Raising a beautiful girl with multiple special needs showed us that "perfect" is all in our minds. Emily's life was perfect. It was happy, it was brilliant. She was social, outgoing, silly, and ticklish. Now we are learning to get through life without our "Perfect Peanut" in it. This is most certainly NOT a new kind of perfect.
Friday, October 30, 2009
Thursday, October 29, 2009
Oink oink oink.
Monkey officially tested positive for H1N1. The pediatrician said he should ride it out, because he's a healthy kid. That way he will build up his immunity to it and not get it again. He prescribed TamiFlu for Peanut, who was blissfuly off at school, having not been sick.
Until we pulled in the driveway from Monkey's appointment, and my cell phone rang. She needs to be picked up.
Screaming, crying, miserable.
Temp of 99.9.
Shit. I gave her the first dose of TamiFlu, but the ped says if her fever tops 100 to take her to the ER. That kids with CP and Epilepsy go downhill fast with this one.
Shit!
Until we pulled in the driveway from Monkey's appointment, and my cell phone rang. She needs to be picked up.
Screaming, crying, miserable.
Temp of 99.9.
Shit. I gave her the first dose of TamiFlu, but the ped says if her fever tops 100 to take her to the ER. That kids with CP and Epilepsy go downhill fast with this one.
Shit!
Worried!
My Monkey boy woke up with a fever of 100.6 this morning. He's had a sore throat, cough, phlemy yuck, since Saturday. But no fever until this morning. There are three kids in our school of only 390 kids, in the hospital with swine flu. That's a lot ....
I am trying to get someone to swab him today, so that if he's positive I can get Peanut on TamiFlu immediately. I am really worried .......
I am trying to get someone to swab him today, so that if he's positive I can get Peanut on TamiFlu immediately. I am really worried .......
Tuesday, October 27, 2009
A quick update
We got the Lamictal generic tonite, called Lamotrigine. I am supposed to start her on half a tablet at night. Okay, this thing is TINY. So I cut it in half with the pill cutter, and then crush it in the pill crusher. Try and get all this tiny powder in a syringe, to pull up some water. I'm wondering if it would dissolve in water, if I just put the half pill in the syringe and then pulled up water, without crushing it first? Seems like she's never going to get the exact dose this way. And no, it doesn't come in a liquid.
Lacey, I freaked out thinking about IS immediately the first time she did it this morning. She did it twice in a row the first time. The second time it was just once. The third time it was twice, and the fourth time it was just once. Not large clusters, like I've read about with IS?
I hate seizures. We went almost six years without a single. It's not fair!
Cathy, her culture grew Enterobacter and she is on Furadantin? From looking online that doesn't look very uncommon, but they sure made it sound like it was. The pharmacy gave me a four day supply even though we don't have the auth yet, because I told them she really needed it and threatened to cry. ;)
Lacey, I freaked out thinking about IS immediately the first time she did it this morning. She did it twice in a row the first time. The second time it was just once. The third time it was twice, and the fourth time it was just once. Not large clusters, like I've read about with IS?
I hate seizures. We went almost six years without a single. It's not fair!
Cathy, her culture grew Enterobacter and she is on Furadantin? From looking online that doesn't look very uncommon, but they sure made it sound like it was. The pharmacy gave me a four day supply even though we don't have the auth yet, because I told them she really needed it and threatened to cry. ;)
New type of seizures
As of today we have new seizures. This has happened four times today. Three of the times while I was holding her, and once while she was sitting on the floor playing.
Her head drops straight down super fast, her arms come out to her sides. It lasts maybe two seconds? Then her head comes back up and she smiles at me like nothing happened.
Drop seizures? Something else? UGH! I don't know. I can't blame it on the Lamictal not working, because we don't even have it yet! That's right, the insurance denied it. First they denied the name brand, and requested that the doctor allow them to fill it with a generic. He agreed, then they refused the generic. They said it needs a prior auth. So we don't have that on board yet, so I don't know if it would be helping or not.
And ... the UTI she had last week? She's been on the wrong antibiotic for the last week. Which explains why her pee is still funky and she still feels like crap. I finally called the pediatrician last night, because no one ever called me to give me the culture results. He said "What? The urology nurse didn't call you last Thursday??" He was furious. Turns out that the UTI is not responsive to Bactrim, the med they put her on last Monday. And the urologist was supposed to call me Thursday to tell me this, and call in some new hardly ever used drug. Which never happened. So the pediatrician called it in last night, and of course the insurance denied it and now we are waiting for THAT appeal also.
Seriously, MediCal, what the hell. It's not like she's having seizures or anything! Oh wait ......
I just left a message at the neurology office, explaining these new spells. I don't like them. I don't like that every week we are seeing new kinds of seizures. I hate them!
Her head drops straight down super fast, her arms come out to her sides. It lasts maybe two seconds? Then her head comes back up and she smiles at me like nothing happened.
Drop seizures? Something else? UGH! I don't know. I can't blame it on the Lamictal not working, because we don't even have it yet! That's right, the insurance denied it. First they denied the name brand, and requested that the doctor allow them to fill it with a generic. He agreed, then they refused the generic. They said it needs a prior auth. So we don't have that on board yet, so I don't know if it would be helping or not.
And ... the UTI she had last week? She's been on the wrong antibiotic for the last week. Which explains why her pee is still funky and she still feels like crap. I finally called the pediatrician last night, because no one ever called me to give me the culture results. He said "What? The urology nurse didn't call you last Thursday??" He was furious. Turns out that the UTI is not responsive to Bactrim, the med they put her on last Monday. And the urologist was supposed to call me Thursday to tell me this, and call in some new hardly ever used drug. Which never happened. So the pediatrician called it in last night, and of course the insurance denied it and now we are waiting for THAT appeal also.
Seriously, MediCal, what the hell. It's not like she's having seizures or anything! Oh wait ......
I just left a message at the neurology office, explaining these new spells. I don't like them. I don't like that every week we are seeing new kinds of seizures. I hate them!
Sunday, October 25, 2009
I love fall!
Pumpkins, Halloween, Thanksgiving, pies, turkey, winter, Christmas, decorations, I love it all! This is my favorite time of year for sure. :) We went to the Pumpkin Patch yesterday. My darling son informed me that this is the last year he is going to allow me to drag him there for pictures. And my dear husband backed him up. So my beautiful daughter and I decided (LOL) that boys are stinky and they aren't invited next year. :)
Thursday, October 22, 2009
Two New Posts in One Day? Wow! :)
I just realized that I got an award! Timmy's mom at TimmyIsPotential gave me a Lemonade Award! I am so happy to get this. Honestly, we moms get so many lemons thrown at us that if we don't quickly learn to make lemonade and enjoy them, we will drown. I'm flattered that she reads my blog and feels I do this well. :)
What is the Lemonade Award?
A Lemonade Award is given to bloggers who show a positive attitude, gratitude, and a willingness to share their ideas, support and online friendship. Another words, When life hands you lemons, you make lemonade and share the wealth.
Here are the rules of the award:
- Put the Lemonade logo on your blog or within your post.
- Nominate at least 10 blogs with great attitude or gratitude.
- Link the nominees within your post.
- Let the nominees know they received this award by commenting on their blog.
- link to the person from whom you received this award.
The 10 blogs that I read that always inspire me are (in no special order of course) -
1. http://annabelgrace.blogspot.com/
2. http://flockofswanns.blogspot.com/
3. http://gavins-voice.blogspot.com/
4. http://hennhouse.blogspot.com/
5. http://heidis-place.blogspot.com/
6. http://marissalynne-07.blogspot.com/
7. http://babyinthebend.blogspot.com/
8. http://momedy.blogspot.com/
9. http://benjaminorton.blogspot.com/
10. http://josieandme.blogspot.com/
For the record, it was really hard for me to pick these 10 people! A lot of people I would pick already have this award on their blog. And there are so many more still who are deserving!
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