Back in and not so well

Emily was re-admitted to the hospital on Thursday. She is back to retching, gagging, screaming. Her g-tube is draining so much that she is on an IV of fluids in addition to her TPN. Today she has had three horrendous episodes of what appear to be metabolic crisis. She screams hysterically, cramps up, her legs and arms get bent and stuck, she shakes and trembles, and drools and gags. The last time she did it today the nurse called the Dr's in. They immediately ordered stat labs to check her metabolic function and found her lactic acid to be high. They said it wasn't quite "acute" but was elevated enough to be concerning. It shows that she is verging on metabolic acidosis. She is stable and asleep for the night, and we are going to see the genetic/metabolic/mitochondrial team in the morning. Please pray for some answers. The neuro and GI still think that everything that is going on is a progression of her underlying disease. Without knowing what that disease is, it's hard to know how to treat or how far to push her. Please pray for answers and guidance!